Always have hope.
This is what Raelynn’s seizures looked like when she was 1 year old. It’s one of the first seizures we ever recorded of her. We started fostering her only about a week before this. At the end of the video, I cover her eyes and then look at them to see if her eyes quickly…
This is what Raelynn’s seizures looked like when she was 2 years old. We used to use an app called Seizure Tracker to monitor many of her seizures. It was very helpful as we wanted to be able to share data with her doctors, and also see if her seizures changed over time (they do).…
This is what Raelynn’s seizures looked like when she was 2 years old. We used to use an app called Seizure Tracker to monitor many of her seizures. It was very helpful as we wanted to be able to share data with her doctors, and also see if her seizures changed over time (they do).…
Raelynn has testing a Tobii Dynavox Eye Gaze to test on a trial basis. This is a video of her playing a game in which she needs to look at the face on the screen, and when she does, it throws a pie in the face! She did a great job with it today! We’re…
Raelynn has been given a Tobii Dynavox Eye Gaze to test on a trial basis. If she does well with it, insurance may pay for her to have one permanently. The Tobii Dynavox allows Raelynn to play many games to help her learn how to use it, but progresses to communication tools which will allow…
This is what Raelynn’s seizures looked like when she was 6 years old. I know it may feel weird to “like” a video such as this, but it really does help us continue making videos of Raelynn’s life with seizures, which helps other parents going through similar things. PLEASE SUBSCRIBE if you found this content…
This is what Raelynn’s seizures looked like when she was 2 years old. We used to use an app called Seizure Tracker to monitor many of her seizures. It was very helpful as we wanted to be able to share data with her doctors, and also see if her seizures changed over time (they do).…
Abby explains what we do when Raelynn begins choking while she’s sitting up in her wheelchair. Sorry if you don’t like the sight of the mucus….
Abby explains how Raelynn sometimes begins choking, and what we do to make sure she’s safe. This often happens right after a seizure, especially when she’s been having excessive secretions.