Always have hope.
Lifting a quadriplegic child can be difficult. But it’s also necessary when transferring a child to a wheelchair. 👇 AND PLEASE SUBSCRIBE if you find this content helpful. 👇 youtube.com/channel/… One of the most important things to remember when lifting a quadriplegic child is that they can’t help you. Normally, when you lift someone, they…
This is a video about treating pain in quadriplegic children. Raelynn sometimes has pain, and we don’t know why. Sometimes we can feel powerless when treating pain in our quadriplegic daughter. It may feel weird to “like” a video such as this, but it really does help us keep making videos of Raelynn’s life with…
This is what Raelynn’s seizures looked like when she was 1 year and 5 months old (she’s 8 years old now). This was a very brief seizure. It may feel weird to “like” a video such as this, but it really does help us keep making videos of Raelynn’s life with seizures, which helps many…
At bedtime, I was so happy that Raelynn had not had any seizures for the whole day! But apparently I spoke too soon, because she had a seizure about an hour later… Her nocturnal seizure begins at 01:41 It may feel weird to “like” a video such as this, but it really does help us…
This is a seizure Raelynn had late last Wednesday night. She often has a seizure late at night. We called it her “bedtime” seizure because it’s the one that often puts her asleep for the night. It may feel weird to “like” a video such as this, but it really does help us keep making…
Following Raelynn’s seizure on Sunday afternoon, I wanted to give an update on the frequency of Raelynn’s seizures lately. 03:04 – Seizure Update It may feel weird to “like” a video such as this, but it really does help us keep making videos of Raelynn’s life with seizures, which helps many parents who are going…
In this video, I show how Raelynn’s feeding tube works. Raelynn eats all of her food through her feeding tube, called a gastrostomy-jejunostomy tube (or GJ tube for short) 👇 PLEASE SUBSCRIBE! It will help Raelynn keep making videos! 👇 youtube.com/channel/… Raelynn doesn’t have a great digestive system. She struggled to eat enough calories by…
In this video, we talk a bit about Raelynn’s Vagal Nerve Stimulator (VNS) and whether it helps her with her seizures. 👇 PLEASE SUBSCRIBE! It will help Raelynn keep making videos! 👇 youtube.com/channel/… Whenever we observe that Raelynn is about to have a seizure, we scan her Vagal Nerve Stimulator with the magnet we were…
Raelynn had a seizure at the hospital each day this week she was getting IVIG treatments. I wasn’t able to record the one she had the first day, but this is the one from the second. It’s an example of a grand mal seizure (also known as tonic clonic seizures). It may feel weird to…
Raelynn received Intravenous Immunoglobulin (IVIG) treatments this week. They will hopefully help with her seizures! 👇 SUBSCRIBE to find out if this treatment is effective! 👇 youtube.com/channel/… There is some evidence that IVIG therapy has helped some people with epilepsy to reduce or eliminate seizures. So we went to the hospital the last two days…