At bedtime, I was so happy that Raelynn had not had any seizures for the whole day! But apparently I spoke too soon, because she had a seizure about an hour later…
Her nocturnal seizure begins at 01:41
It may feel weird to “like” a video such as this, but it really does help us keep making videos of Raelynn’s life with seizures, which helps many parents who are going through similar things.
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Raelynn definitely goes through phases with her seizures. Sometimes she’ll have nothing but loud, explosive tonic clonic seizures for weeks or months straight, and then they’ll suddenly switch to being quiet and subtle. It looks like maybe she’s having more quiet and subtle seizures lately. I do wonder if this is because IVIG is helping to reduce her seizures, or at least it’s reducing the severity of her seizures. We will have to keep watching to see.
The links below show a few seizures Raelynn has had throughout the years:
17 months old: youtu.be/6BEdEB-OJXw
18 months old: youtu.be/XhZMx7GHzBk
21 months old: youtu.be/WXOeCJKECb8
2 years old: youtu.be/om0LVyj74Xs
Almost 3 years old: youtu.be/pVMUT-pg0zU
6 years old: youtu.be/EYNXrQSr9ug
A few playlists you may find helpful:
1) Seizures: youtube.com/watch?v=…
2) Tobii Dynavox: youtube.com/watch?v=…
3) Assistive Equipment: youtube.com/playlist…
You might also see Raelynn make an appearance once in awhile on our family’s Youtube Channel:
youtube.com/user/sma…
Again, if you haven’t done so yet, please consider subscribing! Your subscription will help us keep making videos of Raelynn’s life and assistive technologies!
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