Here’s a video of one of the seizures Raelynn had yesterday. She ended up having just two seizures yesterday, which is on the low end of a normal day for her. This was the second seizure she had, which she had around 7 pm. It may feel weird to “like” a video such as this,…
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A seizure Raelynn had // first seizure of the day
Here’s a video of one of the seizures Raelynn had yesterday. She ended up having just 2 seizures yesterday, which is a pretty good day for her. This was the first one that she had, which she at around 2:30 pm. It may feel weird to “like” a video such as this, but it really…
Benik Hand Splints // how we put them onto Raelynn every night
This video shows how we put the Benik Hand Splint onto Raelynn every night. It’s a simple hand and wrist splint that helps her range of motion. 👇 PLEASE SUBSCRIBE! It will help Raelynn keep making videos! 👇 youtube.com/channel/… Raelynn hasn’t always done the best wearing it. For a long time, she didn’t like it…
Raelynn having a seizure // followed by heavy breathing
Here’s a video of one of the seizures Raelynn had yesterday. She ended up having 3 seizures yesterday. This was the last one, which was her “bedtime” seizure. It may feel weird to “like” a video such as this, but it really does help us keep making videos of Raelynn’s life with seizures, which helps…
Baby Raelynn having a seizure // infantile epilepsy (ST Event)
This is a seizure that Raelynn had when she was 17 months old. We had only been fostering her for a couple weeks at this point, so we were still definitely learning what her seizures looked like. I know it can feel weird to “like” a video like this, but it really does help us…
Raelynn’s Channel Trailer // a channel about life with seizures
This is our daughter Raelynn. She has several seizures every day. I know it can feel strange to “like” a video such as this, but it really would help us keep making videos about her life and medical care. This helps other families going through similar things. 👇 AND PLEASE SUBSCRIBE! 👇 youtube.com/channel/… We’ve seen…
Raelynn having a seizure while choking // fighting for breath during a seizure
This is one of the seizures that Raelynn had today. As you can see, she is sometimes fighting for breath during a seizure. I know it can feel weird to “like” a video like this, but it really does help us to keep making these kinds of videos, which then inform parents who have questions…
Raelynn having a tonic clonic seizure // 2 year old having a seizure (ST Event)
This is an old video of Raelynn when she was a 2 year old having a seizure. It was a tonic clonic seizure (also sometimes called grand mal seizures). I know it may feel weird to “like” a video like this, but it really does help us continue making videos that help parents who are…
TRYING TO AVOID HIP SURGERY! // putting on an Ilfeld hip abduction splint
In this video, I help Raelynn in putting on an Ilfeld hip abduction splint for the first time. 👇 PLEASE SUBSCRIBE! It will help Raelynn keep making videos! 👇 youtube.com/channel/… Raelynn had a doctor’s visit today to discuss hip surgery. The doctor didn’t recommend surgery at this time, and instead gave us this new toy!…
Putting on AFO’s // Ankle Foot Orthotics for Clubfoot
Raelynn has been wearing AFO”s for many years. She wears these Ankle Foot Orthotics for clubfoot. 👇 PLEASE SUBSCRIBE! It will help Raelynn keep making videos! 👇 youtube.com/channel/… In this video, I demonstrate how to put on AFO’s. Raelynn’s AFO’s have definitely improved her range of motion! Her clubfoot treatment has also included receiving Botox…