Always have hope.
If you just want to see the video of the seizure Raelynn had, skip to 00:50. But keep watching for a little encouragement! . Today I took Raelynn to the hospital for an IVIG infusion. I’ll post a video tomorrow or the day after about how that went. But today I just wanted to show…
If you just want to see the video of the seizure Raelynn had, skip to 00:45. But keep watching to get to know Raelynn! 00:00 Seizure Info 00:45 Gelastic “Happy” Seizure 01:55 Dacrystic “Sad” Seizure . This is a seizure Raelynn had about two years ago. We can tell it’s a seizure because of how…
If you just want to see the video of the seizure Raelynn had, skip to 00:33. But keep watching to get to know Raelynn! . This is what we sometimes call a “bedtime seizure.” She was watching a show as we were all getting in bed. I had to jump up out of bed and…
Thank you for those of you who prayed for Raelynn yesterday and left encouraging comments! If you haven’t see that video, here it is: youtu.be/f7vLkZKb9XU . Abby took Raelynn to her bone doctor today and they didn’t find anything wrong. She doesn’t have any broken or dislocated bones. So they wondered if maybe she has…
Raelynn has been having some pains lately, and we haven’t been able to figure out why. . We called her bone doctor, and he didn’t think we needed to come in immediately for it, but said that he would look at it when he sees her for the appointment she already had schedule with him…
We had church outside this morning for the first time in a few weeks (we were online only according to our local Health Department’s recommendation for the weeks prior). Raelynn loves worship time! She listened from inside her tent so that she could lay down in the shade! 00:00 How Sweet the Sound 01:12 Christ…
Raelynn had both of these seizures this week. I think the first one was on Sunday, and the second one was on Thursday. She had several more that I didn’t record, of course, but as I was reviewing footage of these two, I noticed just how similar they were. 00:00 My thoughts 01:08 First Seizure…
We attached a car seat to a patio chair swing using bungee cords, which allowed us to safely buckle Raelynn in so that she could swing! This is the type of swing Raelynn was using: ift.tt/3g5O9MG And this is the kind of car seat we attached to it: ift.tt/307oDRC Before figuring this out, it was…
These are two of the seizures Raelynn had today. 00:00 My Thoughts 00:45 First Seizure (sad) 04:59 Second Seizure (happy) . Both of these seizures are tonic clonic seizures, and Raelynn expressed different emotions in each. In the first, she seemed just a little upset, although not as upset as she often gets in some…
If you just want to see the video of the seizure Raelynn had, skip to 00:30. But keep watching for a bit of encouragement! . Raelynn gets a bit more vocal about how she feels at about a minute and a half into this seizure. And if you’re ever feeling bad, it’s okay to whine…