Always have hope.
If you just want to see the video of the seizure Raelynn had, skip to 01:25. But keep watching to learn about the Clonic Phase of a seizure! . This video shows just the clonic phase of the seizure. For Raelynn, the clonic phase usually makes up the longer part of her seizures. The clonic…
If you can’t handle seeing gross things, you might want to stop watching right now. . We’ve been in the hospital a few times when the nurses would frequently suction Raelynn to the point that the back of her throat got red and irritated from the suctioning tubes. And we’ve actually had to go to…
Sometimes Raelynn doesn’t like standing in her stander. Maybe it’s uncomfortable. Maybe her limbs just didn’t want to extend a certain way. She just wasn’t feeling it today (at first). Did I say “Good job” enough at the end of the video? 😂😂😂 Lol, I didn’t notice until after I uploaded it! . Visit Raelynn’s…
We’re always on the lookout for toys that work well for children with disabilities. Among other things, Raelynn is quadriplegic and has cerebral palsy. But we’ve found toys that she likes! Visit Raelynn’s website to learn more! hopeandsunshine.tv The first toy she played with was custom made just for her. It is a board full…
Raelynn often has at least three seizures in a day. We were able to record this on this day. . 00:00 – First Seizure 01:16 – Second Seizure 03:44 – Third Seizure The third seizure really looked more like a cluster of seizures. She would seem to end one seizure, and start another. If she…
We went to the hospital today and Raelynn got her second IVIG treatment. Of course, she had a seizure as soon as she got her IV in. . I’ve done some more reading on IVIG for seizures, and it looks like the people who reported the best reduction of seizures from IVIG treatments did so…
I found this old video of a seizure Raelynn had when she was 17 months old. I uploaded it not so much because of the seizure, but because you can hear one of my other (then) 8 year old daughters trying to help Raelynn! ❤️ 👍🏻 It may feel weird to “like” a video with…
Raelynn had a seizure while she was in her stander. Here’s a video that explains why she gets in her stander: youtube.com/watch?v=… . Since we try to get Raelynn in her stander for a few hours every day, it would make sense that sometimes she would have a seizure while she’s in it. But having…
When we usually think of seizures, we think about how someone’s body jerks or convulses, but there are actually other kinds of seizures, and it’s interesting that it’s often Raelynn’s eyes that tell us the most about what’s going on. . Visit Raelynn’s website to learn even more! hopeandsunshine.tv 👇 AND PLEASE SUBSCRIBE if you…
Raelynn loves riding the train at the St. Louis zoo! Visit Raelynn’s website to learn more about her! hopeandsunshine.tv 👇 PLEASE SUBSCRIBE if you find this content helpful. youtube.com/channel/… This video is from 2017, but it just reminded me that we need to get back to the St. Louis Zoo as soon as we can!…