Always have hope.
When we usually think of seizures, we think about how someone’s body jerks or convulses, but there are actually other kinds of seizures, and it’s interesting that it’s often Raelynn’s eyes that tell us the most about what’s going on. . Visit Raelynn’s website to learn even more! hopeandsunshine.tv 👇 AND PLEASE SUBSCRIBE if you…
Raelynn loves riding the train at the St. Louis zoo! Visit Raelynn’s website to learn more about her! hopeandsunshine.tv 👇 PLEASE SUBSCRIBE if you find this content helpful. youtube.com/channel/… This video is from 2017, but it just reminded me that we need to get back to the St. Louis Zoo as soon as we can!…
If you just want to see a video of the seizure Raelynn had, skip to 00:31. But keep watching to get to get an update on Raelynn’s seizures! Also, visit her website to learn even more! hopeandsunshine.tv 👍🏻 Give Raelynn a “like” for less seizures! 👇 AND PLEASE SUBSCRIBE if you find this content helpful.…
Raelynn isn’t able to talk. She’s never said a word, as far as we know. But sometimes, when she’s really happy, she moves her mouth and makes noises! She was making high-pitched “Ah” noises just before we started recording…but then she stopped. Also, visit her website to learn even more! hopeandsunshine.tv 👇 PLEASE SUBSCRIBE if…
If you just want to see the video of the seizure Raelynn had, skip to 00:45. But keep watching to learn about Raelynn’s happy seizures! Also, visit her website to learn even more! hopeandsunshine.tv . 👇 AND PLEASE SUBSCRIBE if you find this content helpful. youtube.com/channel/… They’re actually called, “ecstatic seizures.” Raelynn doesn’t have these…
Raelynn loves playing with Wrapples! It’s probably one of her favorite toys. 👇 PLEASE SUBSCRIBE if you find this content helpful. youtube.com/channel/… Little Live Wrapples make good toys for kids like Raelynn. These are a few reasons why Raelynn likes to play with her Wrapples. * They make fun noises, and she likes toys that…
This video talks about how to cath a girl using a straight catheter. It does not show it explicitly, but does show a diagram. Raelynn often retains her urine. While she does usually pee on her own, there are also times when she doesn’t. And if she retains too much urine in her bladder, she…
Watch to the end! I want to share what happens at the end of many of Raelynn’s seizures. It’s not a huge thing, but it is something Raelynn does a lot, but I haven’t seen anyone else with seizures do it or talk about it. Visit Raelynn’s website to learn more about her! sunshinebaby.tv .…
What are seizures like? In this video, I explain how Raelynn’s seizures often look, and what we do to help her while she’s having a seizure. Visit Raelynn’s website to learn even more! hopeandsunshine.tv . 👇 AND PLEASE SUBSCRIBE if you find this content helpful. youtube.com/channel/… Raelynn primarily has tonic clonic seizures. Tonic clonic seizures…
Raelynn is on several seizure meds. Some of them are more helpful than others. We’ve also tried several other meds that I don’t mention in this video. I may make another video about them in the future. Visit Raelynn’s website to learn even more! hopeandsunshine.tv 👇 PLEASE SUBSCRIBE if you find this content helpful. youtube.com/channel/…