All posts by chris

Raelynn sometimes finds the Tobii Dynavox to be difficult to use. It’s a learning process for all of us! We need to learn how to set her up to succeed, and she needs to learn to find the more difficult parts of the screen. This video shows how Raelynn doesn’t always complete the goal. She…

This is the Reveal Blocks game within the Look to Learn games. Raelynn is playing it on the Tobii Dynavox. PLEASE SUBSCRIBE! It will help Raelynn keep making videos! youtube.com/channel/… We’re currently borrowing a Tobii Dynavox Eye Gaze to see if Raelynn could benefit from using it as a communication device. She often does very…

Raelynn was given a Tobii Dynavox Eye Gaze to test on a trial basis. If she does well with it, insurance may pay for her to have one permanently. The Tobii Dynavox allows Raelynn to play many games to help her learn how to use it, but progresses to communication tools which will allow her…

This is what Raelynn’s seizures looked like when she was 1 year old. When Raelynn was new to our home, we had to learn what her seizures looked like. Some were very clear, but others were very subtle. We used to use an app called Seizure Tracker to monitor many of her seizures. It was…

This is what Raelynn’s seizures looked like when she was 17 months old. We’re at the neurologist for a check-up, and also finding out the correct medication and dosage. It was a learning process to be able to recognize her seizures. We used to use an app called Seizure Tracker to monitor many of her…

We hooked up an umbrella to Raelynn’s wheelchair for walks in the sun! This is the umbrella we have: Sport-Brella Versa-Brella SPF 50+ Adjustable Umbrella with Universal Clamp smile.amazon.com/gp/…

This is what Raelynn’s seizures looked like when she was 1 year old. We’re at the neurologist for a check-up, and also finding out the correct medication and dosage. We used to use an app called Seizure Tracker to monitor many of her seizures. It was very helpful as we wanted to be able to…

This was recorded just after Raelynn had a seizure, when she was 1 year old. We often used a flashlight to see if her eyes react quickly to the light, indicating that her seizure was over. We used to use an app called Seizure Tracker to monitor many of her seizures. It was very helpful…

This is what Raelynn’s seizures looked like when she was 1 year old. It’s one of the first seizures we ever recorded of her. We started fostering her only about a week before this. At the end of the video, I cover her eyes and then look at them to see if her eyes quickly…

This is what Raelynn’s seizures looked like when she was 2 years old. We used to use an app called Seizure Tracker to monitor many of her seizures. It was very helpful as we wanted to be able to share data with her doctors, and also see if her seizures changed over time (they do).…