All posts by chris

I could totally be making this up, but it looks to me like Raelynn was trying to talk after this seizure she had last week. Watch the whole thing and let me know what you think. 00:00 Introduction 00:09 Seizure 01:47 Trying to talk? 👍🏻 It may feel weird to “like” a video with a…

Raelynn had these two seizures in the same day. If you just want to see videos of the seizures Raelynn had, skip to 00:45. . 00:00 Introductory Observations 00:45 First Seizure 05:33 Second Seizure 09:28 A Little Encouragement The first seizure Raelynn had was long, and the second was relatively short. For the first one,…

Sometimes Raelynn has pains and we don’t know why. I think this time, she was just a bit uncomfortable and wanted to change positions, so I helped her roll over in bed so that she was on her other side. . And visit Raelynn’s website to learn more about her! hopeandsunshine.tv 👇 AND PLEASE SUBSCRIBE…

I wanted to give an update on how Raelynn’s seizures have been lately. She had a great week last week! Also, I’m working a project about the prevalence of seizures! Check out these channels who have contributed to it! 👉 Steph (my life with tubes): youtube.com/channel/… 👉 Cassidy (Chronically Cassidy): youtube.com/channel/… 👉 Caitlyn (seizurefreejourney): youtube.com/channel/…

This is a tonic clonic seizure video from when Raelynn was 17 months old. It might also be labeled a dacrystic seizure since it caused her to cry and moan. . We used to use an app called Seizure Tracker to monitor many of her seizures. It was very helpful as we wanted to be…

Raelynn wasn’t acting like she felt the best. So sometimes going for a walk helps! Visit Raelynn’s website to learn even more! hopeandsunshine.tv 👇 AND PLEASE SUBSCRIBE if you find this content helpful. youtube.com/channel/… The links below show a few seizures Raelynn has had throughout the years: ▶️ 17 months old: youtu.be/6BEdEB-OJXw ▶️ 18 months…

So I have one more video from when Raelynn got IVIG last week. Towards the end of her treatment, after we had been there about two hours, we noticed that she had a strange rash. . The rash is kind of hard to see in the video, but basically she broke out in blotchy hives…

If you just want to see the video of the seizure Raelynn had, skip to 00:46. But keep watching for a little encouragement! . Since Raelynn doesn’t talk, I can’t just ask her what her seizures are like. I’ve had to learn about how she experiences her seizures from others. One thing I learned is…

If you just want to see the video of the seizure Raelynn had, skip to 00:25. But keep watching for a little encouragement! . This is a seizure from 2013, when we first started fostering Raelynn. Looking back at some of these seizures from when she was very young reminds me that some of the…

Raelynn and I spent the day in the hospital on Tuesday, while she got an IVIG treatment. Come spend the day with her! 00:00 Getting Ready to Go 02:18 Traveling to the Hospital 02:24 Arriving at the Hospital 03:59 Getting IVIG 13:18 Still Getting IVIG (new song) 25:26 IVIG Complete! Visit Raelynn’s website to learn…