All posts by chris

This is a tonic clonic seizure video from when Raelynn was 17 months old. It might also be labeled a dacrystic seizure since it caused her to cry and moan. . We used to use an app called Seizure Tracker to monitor many of her seizures. It was very helpful as we wanted to be…

Raelynn wasn’t acting like she felt the best. So sometimes going for a walk helps! Visit Raelynn’s website to learn even more! hopeandsunshine.tv 👇 AND PLEASE SUBSCRIBE if you find this content helpful. youtube.com/channel/… The links below show a few seizures Raelynn has had throughout the years: ▶️ 17 months old: youtu.be/6BEdEB-OJXw ▶️ 18 months…

So I have one more video from when Raelynn got IVIG last week. Towards the end of her treatment, after we had been there about two hours, we noticed that she had a strange rash. . The rash is kind of hard to see in the video, but basically she broke out in blotchy hives…

If you just want to see the video of the seizure Raelynn had, skip to 00:46. But keep watching for a little encouragement! . Since Raelynn doesn’t talk, I can’t just ask her what her seizures are like. I’ve had to learn about how she experiences her seizures from others. One thing I learned is…

If you just want to see the video of the seizure Raelynn had, skip to 00:25. But keep watching for a little encouragement! . This is a seizure from 2013, when we first started fostering Raelynn. Looking back at some of these seizures from when she was very young reminds me that some of the…

Raelynn and I spent the day in the hospital on Tuesday, while she got an IVIG treatment. Come spend the day with her! 00:00 Getting Ready to Go 02:18 Traveling to the Hospital 02:24 Arriving at the Hospital 03:59 Getting IVIG 13:18 Still Getting IVIG (new song) 25:26 IVIG Complete! Visit Raelynn’s website to learn…

If you just want to see the video of the seizure Raelynn had, skip to 00:50. But keep watching for a little encouragement! . Today I took Raelynn to the hospital for an IVIG infusion. I’ll post a video tomorrow or the day after about how that went. But today I just wanted to show…

If you just want to see the video of the seizure Raelynn had, skip to 00:45. But keep watching to get to know Raelynn! 00:00 Seizure Info 00:45 Gelastic “Happy” Seizure 01:55 Dacrystic “Sad” Seizure . This is a seizure Raelynn had about two years ago. We can tell it’s a seizure because of how…

If you just want to see the video of the seizure Raelynn had, skip to 00:33. But keep watching to get to know Raelynn! . This is what we sometimes call a “bedtime seizure.” She was watching a show as we were all getting in bed. I had to jump up out of bed and…

Thank you for those of you who prayed for Raelynn yesterday and left encouraging comments! If you haven’t see that video, here it is: youtu.be/f7vLkZKb9XU . Abby took Raelynn to her bone doctor today and they didn’t find anything wrong. She doesn’t have any broken or dislocated bones. So they wondered if maybe she has…