All posts by chris

I actually kind of enjoy going to the hospital with Raelynn for her IVIG treatments. It’s fairly quiet, and we just sit together and watch cartoons, or listen to the other patients (which can sometimes be interesting). Raelynn did have a seizure in the car on the way there. I’ll upload the full video of…

Raelynn’s seizures are typically around 3 to 5 minutes long. This one was just a little longer than that. If you just want to see the video of the seizure Raelynn had, skip to 01:03. But keep watching for a little encouragement! . This seizure was just over 6 minutes long. In fact, as you’ll…

If you just want to see the video of the seizure Raelynn had, skip to 01:27. But keep watching to get to know us! . Throughout this seizure, you’ll to hear my wife Abby working in the background. We both teach English to Chinese children over the internet, and Abby happened to be teaching a…

Playing peek-a-boo with Raelynn helped her to learn to look at us, and she really liked it! This is a video from 2014, when Raelynn was two years old. Among other things, Raelynn has global developmental delay. For Raelynn, this means that she’s severely behind in nearly all milestones that other children would normally be…

A lot of Raelynn’s tonic clonic seizures put her to sleep afterwards. If you just want to see the video of the seizure Raelynn had, skip to 00:50. But keep watching to get to know Raelynn! . If you have seizures, leave a comment and let me know if you often fall asleep afterwards, too.…

If you just want to see the video of the seizure Raelynn had, skip to 00:44. But keep watching to get to know Raelynn! . Raelynn had these three seizures in the same day one day last week. All three of them are tonic clonic and but it’s interesting looking at them how they’re all…

If you just want to see the video of the seizure Raelynn had, skip to 00:54. But keep watching to hear a few of my thoughts as I help Raelynn during her seizures. . I usually try to make it a point to talk soothingly to Raelynn during her seizures. I don’t always talk much,…

Seizures are bad. Even one seizure can frighten a person with the looming fear of seizures for many years. According to the Mayo Clinic, “A seizure is a sudden, uncontrolled electrical disturbance in the brain.” Sometimes people have seizures because they have epilepsy. Sometimes it’s because of a brain injury. And sometimes they never even…

If you just want to see the seizures Raelynn had, skip ahead 45 seconds. 00:00 My Thoughts 00:45 First Seizure 05:58 Second Seizure . Raelynn had these two seizures a couple days ago. The first one started out slow but intensified a bit as it progressed. You’ll see that it also left her really twitchy…

I have several updates I want to share in this video! And I thought I’d let you see this cutie fall asleep while I go through them. 00:00 First Update: Less Seizures! 00:34 Second Update: Online Store! 00:50 Third Update: Mini Documentary! Order a t-shirt or hoodie! ift.tt/32PO4r1 Contact me if you want to colab!…