Raelynn has been having some pains lately, and we haven’t been able to figure out why. . We called her bone doctor, and he didn’t think we needed to come in immediately for it, but said that he would look at it when he sees her for the appointment she already had schedule with him…
All posts by chris
RAELYNN LOVES MUSIC!
We had church outside this morning for the first time in a few weeks (we were online only according to our local Health Department’s recommendation for the weeks prior). Raelynn loves worship time! She listened from inside her tent so that she could lay down in the shade! 00:00 How Sweet the Sound 01:12 Christ…
Two Similar Seizures // and a message of hope
Raelynn had both of these seizures this week. I think the first one was on Sunday, and the second one was on Thursday. She had several more that I didn’t record, of course, but as I was reviewing footage of these two, I noticed just how similar they were. 00:00 My thoughts 01:08 First Seizure…
RAELYNN LOVES TO SWING! // a safe chair swing hack for a quadriplegic child
We attached a car seat to a patio chair swing using bungee cords, which allowed us to safely buckle Raelynn in so that she could swing! This is the type of swing Raelynn was using: ift.tt/3g5O9MG And this is the kind of car seat we attached to it: ift.tt/307oDRC Before figuring this out, it was…
Video of 2 Seizures // one “happy,” and one “sad”
These are two of the seizures Raelynn had today. 00:00 My Thoughts 00:45 First Seizure (sad) 04:59 Second Seizure (happy) . Both of these seizures are tonic clonic seizures, and Raelynn expressed different emotions in each. In the first, she seemed just a little upset, although not as upset as she often gets in some…
Seizure video // SHE MADE LOTS OF NOISES!
If you just want to see the video of the seizure Raelynn had, skip to 00:30. But keep watching for a bit of encouragement! . Raelynn gets a bit more vocal about how she feels at about a minute and a half into this seizure. And if you’re ever feeling bad, it’s okay to whine…
FINALLY Getting Foot Casts OFF!
Raelynn had one of her foot surgeries in 2017, and she had to have casts on both of her feet. It seemed like the casts were on FOREVER! She was happy to get her casts off!!! 👇 PLEASE SUBSCRIBE if you find this content helpful! youtube.com/channel/… The dremel tool they used to cut her casts…
2 Seizures and a Little Suctioning
Raelynn had both of these seizures in the same day, and both of them needed just a little bit of suctioning. 00:00 First Seizure 02:35 Second Seizure 04:54 My Thoughts . We usually use suctioning very sparingly. If you notice from both of these seizures, I suctioned her mostly just to keep her from sucking…
Seizure video // worried she’d bite her tongue…
I thought it was just a little odd how Raelynn stuck out her tongue after this seizure was over. She didn’t end up biting her tongue, but I was worried that she would. . 00:00 Seizure 03:38 Raelynn sticks out tongue 04:26 My thoughts Visit Raelynn’s website to learn even more! hopeandsunshine.tv 👇 AND PLEASE…
Seizure video // and an update on Raelynn’s channel
If you just want to see the video of the seizure Raelynn had, skip to 0:51. But keep watching to hear how Raelynn is helping people all over the world! . I want to share a couple updates about this channel. First, I want to let you know that I’m going to decrease how many…