Seizures are bad. Even one seizure can frighten a person with the looming fear of seizures for many years. According to the Mayo Clinic, βA seizure is a sudden, uncontrolled electrical disturbance in the brain.β
Sometimes people have seizures because they have epilepsy. Sometimes itβs because of a brain injury. And sometimes they never even find out why they had them.
But there’s something in the world even worse than seizures.
.
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βΆοΈ Chronically Cassidy: youtube.com/chronica…
βΆοΈ MySecretWorldOfSeizures: youtube.com/channel/…
βΆοΈ SeizureFreeJourney: youtube.com/channel/…
βΆοΈ Ketaki Chitale: youtube.com/KetakiCh…
βΆοΈ My Life with Tubes: youtube.com/channel/…
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00:00 – Part 1: How Big is the Problem?
02:20 – Part 2: What Are Seizures Like?
04:30 – Part 3: Stories about Seizures
10:40 – Part 4: Hope
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Raelynn has epileptic encephalopathy, global developmental delay, cerebral palsy, cortical vision impairment, and I could go on and on. In fact, I’ll go on a little more. Raelynn is quadriplegic. She has a gastro-jejunal (GJ) tube through which she “eats” all of her food. She has a vagus nerve stimulator (vns), and is currently getting intravenous immunoglobulin (ivig) treatments to hopefully help with her seizures. She regularly wears a shaker vest, uses a nebulizer, and a cough assist machine to help her breath better, especially when she seems extra susceptible to aspirating on her oral secretions.
Raelynnβs been to the doctor more times than the rest of our family combined!
In this whole situation, if we were looking for hope in our circumstances, we honestly wouldnβt find much. Raelynn will probably always be in a wheelchair. Sheβll probably always be fed via a food pump. Sheβll probably never talk. And she has virtually no chance of getting better.
I canβt tell you how many times people have told me, βGod can heal her.β Iβve actually come to find it a little funny when people say that (and I’m a pastor!). I know that God CAN heal her, and I know that God will heal her in eternity, but the point of life is not that we wouldnβt have difficult circumstances.
God is using Raelynn exactly as she is right now. I see how much Iβm a better person because of Raelynn. I see the ways God has changed my family, the things Heβs taught us, the people Heβs put us in connection with, all because of Raelynnβs problems. When I see how much God uses her disabilities, I see that God takes the bad things, the hard things, the hopeless circumstances of our lives and brings beauty, goodness, and hope from them all.
That’s what this channel’s about.
We post videos of Raelynn’s life, seizures, and other disabilities to this channel three days a week (Monday, Wednesday, Friday).
If this sounds like something you could benefit from, please consider subscribing! Your subscription will help us keep making videos of Raelynn’s life and assistive technologies! β€οΈ
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