Always have hope.
Raelynn was given a Tobii Dynavox Eye Gaze to test on a trial basis. If she does well with it, insurance may pay for her to have one permanently. The Tobii Dynavox allows Raelynn to play many games to help her learn how to use it, but progresses to communication tools which will allow her…
This is what Raelynn’s seizures looked like when she was 1 year old. When Raelynn was new to our home, we had to learn what her seizures looked like. Some were very clear, but others were very subtle. We used to use an app called Seizure Tracker to monitor many of her seizures. It was…
This is what Raelynn’s seizures looked like when she was 17 months old. We’re at the neurologist for a check-up, and also finding out the correct medication and dosage. It was a learning process to be able to recognize her seizures. We used to use an app called Seizure Tracker to monitor many of her…
We hooked up an umbrella to Raelynn’s wheelchair for walks in the sun! This is the umbrella we have: Sport-Brella Versa-Brella SPF 50+ Adjustable Umbrella with Universal Clamp smile.amazon.com/gp/…
This is what Raelynn’s seizures looked like when she was 1 year old. We’re at the neurologist for a check-up, and also finding out the correct medication and dosage. We used to use an app called Seizure Tracker to monitor many of her seizures. It was very helpful as we wanted to be able to…
This was recorded just after Raelynn had a seizure, when she was 1 year old. We often used a flashlight to see if her eyes react quickly to the light, indicating that her seizure was over. We used to use an app called Seizure Tracker to monitor many of her seizures. It was very helpful…
This is what Raelynn’s seizures looked like when she was 1 year old. It’s one of the first seizures we ever recorded of her. We started fostering her only about a week before this. At the end of the video, I cover her eyes and then look at them to see if her eyes quickly…
This is what Raelynn’s seizures looked like when she was 2 years old. We used to use an app called Seizure Tracker to monitor many of her seizures. It was very helpful as we wanted to be able to share data with her doctors, and also see if her seizures changed over time (they do).…
This is what Raelynn’s seizures looked like when she was 2 years old. We used to use an app called Seizure Tracker to monitor many of her seizures. It was very helpful as we wanted to be able to share data with her doctors, and also see if her seizures changed over time (they do).…
Raelynn has testing a Tobii Dynavox Eye Gaze to test on a trial basis. This is a video of her playing a game in which she needs to look at the face on the screen, and when she does, it throws a pie in the face! She did a great job with it today! We’re…