All posts by chris

I found this old video of a seizure Raelynn had when she was 17 months old. I uploaded it not so much because of the seizure, but because you can hear one of my other (then) 8 year old daughters trying to help Raelynn! ❤️ 👍🏻 It may feel weird to “like” a video with…

Raelynn had a seizure while she was in her stander. Here’s a video that explains why she gets in her stander: youtube.com/watch?v=… . Since we try to get Raelynn in her stander for a few hours every day, it would make sense that sometimes she would have a seizure while she’s in it. But having…

When we usually think of seizures, we think about how someone’s body jerks or convulses, but there are actually other kinds of seizures, and it’s interesting that it’s often Raelynn’s eyes that tell us the most about what’s going on. . Visit Raelynn’s website to learn even more! hopeandsunshine.tv 👇 AND PLEASE SUBSCRIBE if you…

Raelynn loves riding the train at the St. Louis zoo! Visit Raelynn’s website to learn more about her! hopeandsunshine.tv 👇 PLEASE SUBSCRIBE if you find this content helpful. youtube.com/channel/… This video is from 2017, but it just reminded me that we need to get back to the St. Louis Zoo as soon as we can!…

If you just want to see a video of the seizure Raelynn had, skip to 00:31. But keep watching to get to get an update on Raelynn’s seizures! Also, visit her website to learn even more! hopeandsunshine.tv 👍🏻 Give Raelynn a “like” for less seizures! 👇 AND PLEASE SUBSCRIBE if you find this content helpful.…

Raelynn isn’t able to talk. She’s never said a word, as far as we know. But sometimes, when she’s really happy, she moves her mouth and makes noises! She was making high-pitched “Ah” noises just before we started recording…but then she stopped. Also, visit her website to learn even more! hopeandsunshine.tv 👇 PLEASE SUBSCRIBE if…

If you just want to see the video of the seizure Raelynn had, skip to 00:45. But keep watching to learn about Raelynn’s happy seizures! Also, visit her website to learn even more! hopeandsunshine.tv . 👇 AND PLEASE SUBSCRIBE if you find this content helpful. youtube.com/channel/… They’re actually called, “ecstatic seizures.” Raelynn doesn’t have these…

Raelynn loves playing with Wrapples! It’s probably one of her favorite toys. 👇 PLEASE SUBSCRIBE if you find this content helpful. youtube.com/channel/… Little Live Wrapples make good toys for kids like Raelynn. These are a few reasons why Raelynn likes to play with her Wrapples. * They make fun noises, and she likes toys that…

This video talks about how to cath a girl using a straight catheter. It does not show it explicitly, but does show a diagram. Raelynn often retains her urine. While she does usually pee on her own, there are also times when she doesn’t. And if she retains too much urine in her bladder, she…

Watch to the end! I want to share what happens at the end of many of Raelynn’s seizures. It’s not a huge thing, but it is something Raelynn does a lot, but I haven’t seen anyone else with seizures do it or talk about it. Visit Raelynn’s website to learn more about her! sunshinebaby.tv .…