All posts by chris

Raelynn’s EnteraLite Infinity food pump sometimes has the error “No Flow In” or “No Flow out.” But we know how to fix it! 00:00 Intro 00:16 Food Pump Fix 04:13 Seizure 07:50 Stander Time! 08:38 Bed Time! This food pump error usually happens when it runs out of food and we have to put more…

I feel so awkward vlogging! I couldn’t find the Equate brand of the oil sheets on Amazon, so I’ll link to the Clean & Clear brand instead. Also, if you want the cheaper brand instead, I’ll link to those as well. Basically, we really like the Clean & Clear Old Absorbing Sheets (also called Oil…

Mindflex is a great game for quadriplegic children and children with cerebral palsy! Raelynn can play it with her brain! 👍🏻 LIKE THIS VIDEO IF RAELYNN DID A GOOD JOB!!! We’re not completely sure how Mind Flex works. It somehow reads brain activity and turns on a fan, making the little ball float. You can…

This is a very brief look of what it’s like to get IVIG. Basically, there’s a whole lot of laying around. 👍🏻 LIKE THIS VIDEO IF RAELYNN IS A CUTIE! IVIG stands for Intravenous Immunoglobulin therapy. It boosts a person’s immune system by giving them a blood product prepared from the serum of thousands of…

This is the end of one of the very first seizures we ever recorded Raelynn having. Before I play the whole video, I just wanted to say a couple things I noticed as I watched it again. . As you’ll be able to tell from this video, we were very much still trying to figure…

We just got this game called Mind Flex in the mail and we wanted to see if Raelynn could play it. Unfortunately, she slept the whole time. However, she still played the game while she was asleep! 👍🏻 LIKE THIS VIDEO TO SEE RAELYNN PLAY IT WHILE AWAKE! Mind Flex somehow measures brain activity or…

I made a little storage cubby for the foot of Raelynn’s bed. It’s made from completely from plywood scraps that I had laying around leftover from other projects! How did it turn out? 👍🏻 LIKE THIS VIDEO IF YOU THINK RAELYNN LIKES IT! I made this because Raelynn’s mattress has the tendency to shift down…

Raelynn needed suctioning during this seizure. If you just want to see the whole seizure, skip to 01:39. . Raelynn will occasionally need suctioning during her seizures because something about her seizures often causes a lot of mucus to gather at the back of her throat. And if she were to breathe heavily while that…

Raelynn has been having warm spots at times on her body. Her doctors wanted her to go to the ER today to be tested, just in case it’s a symptom that her infection is coming back. . Raelynn had a seizure in the car while I was driving to the hospital, and she also had…

This is a seizure that Raelynn recently had. Skip ahead to 02:21 if you just want to see it. But keep watching to learn about this channel! . I’m not sure I ever shared how Raelynn’s YouTube channel came to be. When we first brought Raelynn into our home through foster care, we started recording…