Raelynn’s shaker vest is called the Respirtech InCourage. It’s really easy to use! It helps to make sure her lungs and airway are clear, so that she breathes better. Raelynn actually seems to enjoy her shaker vest, and you can often see her smiling while it’s shaking her. Although, there was one point today when…
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Morning Seizure // and vlogging Raelynn’s day!
Raelynn woke up late morning and started her day with a seizure. After she recovered, though, she had a pretty good, productive day! Skip to 01:43 to just see the seizure. . TheJACKman’s channel: youtube.com/channel/… Affiliate links: Good oil sheets: amzn.to/35ScUZF Cheaper oil sheets: amzn.to/3p7ngwB 00:00 – Intro 00:08 – Good Morning, Raelynn! 00:24 –…
HER FACE WAS SO OILY!!! // she also needed lots of suctioning today!!
Today was just a normal, boring day. You’ll see me clean Raelynn’s face with oil absorbing sheets, and also do a bit of suctioning. Affiliate links: Good oil sheets: amzn.to/35ScUZF Cheaper oil sheets: amzn.to/3p7ngwB Visit Raelynn’s website to learn even more! hopeandsunshine.tv 👇 AND PLEASE SUBSCRIBE if you find this content helpful. youtube.com/channel/… The links…
Brain MRI of an Epileptic Infant // Raelynn’s first MRI
Raelynn’s got an MRI when she was just under 1 month old. She had already been having seizures and they wanted to see if they could determine the cause through an MRI. . Unfortunately, they were not able to find out why Raelynn has seizures from her MRI. Her brain appeared to be normal. But…
Fix “No Flow Out” for Food Pump! // plus a vlog and a seizure…
Raelynn’s EnteraLite Infinity food pump sometimes has the error “No Flow In” or “No Flow out.” But we know how to fix it! 00:00 Intro 00:16 Food Pump Fix 04:13 Seizure 07:50 Stander Time! 08:38 Bed Time! This food pump error usually happens when it runs out of food and we have to put more…
Raelynn has 2 seizures, reviewing oil sheets, and a bit of vlogging
I feel so awkward vlogging! I couldn’t find the Equate brand of the oil sheets on Amazon, so I’ll link to the Clean & Clear brand instead. Also, if you want the cheaper brand instead, I’ll link to those as well. Basically, we really like the Clean & Clear Old Absorbing Sheets (also called Oil…
QUADRiPLEGiC PLAYS MiNDFLEX!!!
Mindflex is a great game for quadriplegic children and children with cerebral palsy! Raelynn can play it with her brain! 👍🏻 LIKE THIS VIDEO IF RAELYNN DID A GOOD JOB!!! We’re not completely sure how Mind Flex works. It somehow reads brain activity and turns on a fan, making the little ball float. You can…
What is it Like Getting IVIG?
This is a very brief look of what it’s like to get IVIG. Basically, there’s a whole lot of laying around. 👍🏻 LIKE THIS VIDEO IF RAELYNN IS A CUTIE! IVIG stands for Intravenous Immunoglobulin therapy. It boosts a person’s immune system by giving them a blood product prepared from the serum of thousands of…
End of a Seizure // can you tell when it’s over?
This is the end of one of the very first seizures we ever recorded Raelynn having. Before I play the whole video, I just wanted to say a couple things I noticed as I watched it again. . As you’ll be able to tell from this video, we were very much still trying to figure…
RAELYNN PLAYED A GAME…WHiLE SLEEPiNG!!!
We just got this game called Mind Flex in the mail and we wanted to see if Raelynn could play it. Unfortunately, she slept the whole time. However, she still played the game while she was asleep! 👍🏻 LIKE THIS VIDEO TO SEE RAELYNN PLAY IT WHILE AWAKE! Mind Flex somehow measures brain activity or…