Raelynn has been joining watching church online from home. This video shows her react to church. I think she loves the music the most! 00:00 – Intro 01:26 – Church starts! 02:23 – Worship Music 05:40 – Children’s Sermon 08:44 – Sermon Here’s more of the service: youtu.be/DSg3SE7Igpw Visit Raelynn’s website to learn even more!…
All posts by chris
You need to see this short film about seizures… #shorts
Link to the full video is in the first comment. I made this mini documentary about seizures last year with the help of several other YouTubers. If you haven’t seen it yet, you need to. And if you’ve already seen it, please share it to get the message out! #shorts #seizures #epilepsy
RAELYNN HAD A GOOD DAY!
Raelynn had a good, productive day today. Her teacher came to our house, she played with toys, and she worked hard! Raelynn did have some seizures, but they did not keep her from being productive and having a good day! Visit Raelynn’s website to learn even more! hopeandsunshine.tv 👇 AND PLEASE SUBSCRIBE if you find…
Raelynn had a seizure on a school day…
Raelynn is finally starting school again after all the surgeries and healing she went through. She’s homebound, so a teacher comes to our house to do school with her. But it was not a good day for seizures. 🙁 00:00 – Intro 00:10 – Getting Ready for School 05:48 – School 06:34 – Seizure .…
Normal Day Living with Disabilities // btw, NO SEIZURES TODAY!
I decided to keep trying this whole vlog format. Let me know what you think. I still feel so awkward, lol. Raelynn played a game with one of our kids’ friends. Go check out his channel! Purple Anime: youtube.com/channel/… You’ll also see me transfer Raelynn to her wheelchair, clean her face with oil sheets, and…
Removing PICC Line from arm at home
Raelynn had her PICC Line removed today! It’s been in her arm for about two months now, since she needed IV antibiotics ever since her last surgery. She’s so glad to get it out! 👍🏻 LIKE THIS VIDEO IF YOU’RE HAPPY FOR RAELYNN! It didn’t cause her any pain to get the PICC Line removed.…
Using the RespirTech InCourage Shaker Vest // SHE LIKES IT!
Raelynn’s shaker vest is called the Respirtech InCourage. It’s really easy to use! It helps to make sure her lungs and airway are clear, so that she breathes better. Raelynn actually seems to enjoy her shaker vest, and you can often see her smiling while it’s shaking her. Although, there was one point today when…
Morning Seizure // and vlogging Raelynn’s day!
Raelynn woke up late morning and started her day with a seizure. After she recovered, though, she had a pretty good, productive day! Skip to 01:43 to just see the seizure. . TheJACKman’s channel: youtube.com/channel/… Affiliate links: Good oil sheets: amzn.to/35ScUZF Cheaper oil sheets: amzn.to/3p7ngwB 00:00 – Intro 00:08 – Good Morning, Raelynn! 00:24 –…
HER FACE WAS SO OILY!!! // she also needed lots of suctioning today!!
Today was just a normal, boring day. You’ll see me clean Raelynn’s face with oil absorbing sheets, and also do a bit of suctioning. Affiliate links: Good oil sheets: amzn.to/35ScUZF Cheaper oil sheets: amzn.to/3p7ngwB Visit Raelynn’s website to learn even more! hopeandsunshine.tv 👇 AND PLEASE SUBSCRIBE if you find this content helpful. youtube.com/channel/… The links…
Brain MRI of an Epileptic Infant // Raelynn’s first MRI
Raelynn’s got an MRI when she was just under 1 month old. She had already been having seizures and they wanted to see if they could determine the cause through an MRI. . Unfortunately, they were not able to find out why Raelynn has seizures from her MRI. Her brain appeared to be normal. But…