All posts by chris

Today we received and unboxed Raelynn’s new formula: Kate Farms Pediatric Peptide. This is the formula that her dietician recommended that she try. It’s healthier than the diet she’s been on. Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 Subscribe: youtube.com/channel/… 00:00 Intro 00:12 Unboxing Kate Farms Formula 03:21 Watching “A Week Away” 04:13 Be Blessed! A few playlists…

There’s a trend online in which many people attempt to fake seizures. Angelique Busko of MyJourneyToBeSeizureFree is not one of them. In this video, I compare Angelique’s seizures to my daughter’s seizures, and show how they cannot be anything other than completely genuine. Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 Subscribe: youtube.com/channel/… 00:00 Intro / Daily Activities 01:01…

Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 Subscribe: youtube.com/channel/… 00:00 Intro 00:30 Going for a Walk! 03:24 Watching The Chosen 04:24 Seizure 09:58 Drifting to Sleep A few playlists you may find helpful: ⏩ Seizures: youtube.com/watch?v=… ⏩ Assistive Equipment: youtube.com/watch?v=… ⏩ Medical Procedures: youtube.com/playlist… ⏩ Living Life with Disabilities: youtube.com/playlist… ABOUT RAELYNN’S YOUTUBE CHANNEL Raelynn has epileptic encephalopathy,…

Our kids got their Easter baskets a day early since we have an early church service in the morning! We don’t always give them Easter baskets, and we don’t do anything extravagant, but I’m sure they appreciate the chocolate! And Raelynn will like her Easter basket, too! Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 00:00 Intro 00:52 Digging…

Since Raelynn has often needed extra Oxygen lately, we’ve been more diligent to give her a Nebulizer treatment every day. Specifically, she gets Budesonide through her nebulizer. This helps to open up her airway and prevent irritation and swelling, this helping her breathe better. In addition to the cough assist and shaker vest, this has…

We never know when Raelynn will have her seizures. She went a whole day without having any tonic clonic seizures, and then she had two just after midnight. Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 00:00 Intro 00:58 First Seizure 05:56 Second Seizure 08:21 Goodnight! 👇 AND PLEASE SUBSCRIBE if you find this content helpful. youtube.com/channel/… A few…

Raelynn has been having trouble sleeping, so I thought I’d dig through Raelynn’s toys to find something that may help her sleep better an night. I’ve also included video from a seizure Raelynn had on May 23. Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 00:00 Intro 00:42 Finding Raelynn’s Toy 02:38 Always have hope! 03:07 Seizure 08:38 Showing…

In this video, we tell Raelynn’s adoption story. Raelynn has had medical complexities since we started fostering her, but we were always willing to adopt her. Adopting Raelynn through the foster care system had its advantages and disadvantages, but we’re glad we went that route. Part 1: youtu.be/EidKvC9bYZM Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 00:00 – Intro…

I thought I’d update everyone about how many seizures Raelynn has been having. I might make this a thing. #shorts #seizures

The cough assist has been helping Raelynn breathe better. If helps her learn to take deeper breaths. But she doesn’t like it that much! Follow Raelynn on Instagram! ift.tt/2Pwxk52 00:00 – Intro/Instagram Announcement 00:50 – Getting in the Stander! 02:37 – Cough Assist 05:30 – Going to see the doctor (without Raelynn) 06:57 – Cough…