All posts by chris

Our kids got their Easter baskets a day early since we have an early church service in the morning! We don’t always give them Easter baskets, and we don’t do anything extravagant, but I’m sure they appreciate the chocolate! And Raelynn will like her Easter basket, too! Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 Subscribe: youtube.com/channel/… 00:00 Intro…

We’ve been borrowing a WinSlate Enable Eyes device for the past month. This is the last time Raelynn was able to use it. This video will show real time, unedited usage of Raelynn on the WinSlate Eye Gaze. At the end of video, I discuss whether she can benefit from an eye gaze device. Website:…

We ordered and received t-shirts for our YouTube channel! You can also get one by going to ift.tt/3acJLuC Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 Subscribe: youtube.com/channel/… 00:00 Intro 00:07 Ordering our t-shirts! 01:36 Receiving our t-shirts! 02:57 Modeling our t-shirts! By the way, we don’t actually make the t-shirts ourselves. We use a service called Printify that…

This is a seizure that my daughter Raelynn had. Skip to 01:15 to see the full seizure. Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 Subscribe: youtube.com/channel/… It’s common for my daugher to have excessive saliva and drool during her seizures. So it’s always good to have her suction machine nearby and ready just in case there’s a possibility…

Nothing really happens in this video. It was a lazy day. But it was also a good day. Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 Subscribe: youtube.com/channel/… A few playlists you may find helpful: ⏩ Seizures: youtube.com/watch?v=… ⏩ Assistive Equipment: youtube.com/watch?v=… ⏩ Medical Procedures: youtube.com/playlist… ⏩ Living Life with Disabilities: youtube.com/playlist… ABOUT RAELYNN’S YOUTUBE CHANNEL Raelynn has epileptic…

We’re doing a LIVE question & answer! It’s our very first live stream, so be patient with us! Sorry the audio wasn’t working for the first minute! Skip to 01:20 to hear it! Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 Subscribe: youtube.com/channel/… A few playlists you may find helpful: ⏩ Seizures: youtube.com/watch?v=… ⏩ Assistive Equipment: youtube.com/watch?v=… ⏩ Medical…

Today we received and unboxed Raelynn’s new formula: Kate Farms Pediatric Peptide. This is the formula that her dietician recommended that she try. It’s healthier than the diet she’s been on. Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 Subscribe: youtube.com/channel/… 00:00 Intro 00:12 Unboxing Kate Farms Formula 03:21 Watching “A Week Away” 04:13 Be Blessed! A few playlists…

There’s a trend online in which many people attempt to fake seizures. Angelique Busko of MyJourneyToBeSeizureFree is not one of them. In this video, I compare Angelique’s seizures to my daughter’s seizures, and show how they cannot be anything other than completely genuine. Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 Subscribe: youtube.com/channel/… 00:00 Intro / Daily Activities 01:01…

Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 Subscribe: youtube.com/channel/… 00:00 Intro 00:30 Going for a Walk! 03:24 Watching The Chosen 04:24 Seizure 09:58 Drifting to Sleep A few playlists you may find helpful: ⏩ Seizures: youtube.com/watch?v=… ⏩ Assistive Equipment: youtube.com/watch?v=… ⏩ Medical Procedures: youtube.com/playlist… ⏩ Living Life with Disabilities: youtube.com/playlist… ABOUT RAELYNN’S YOUTUBE CHANNEL Raelynn has epileptic encephalopathy,…

Our kids got their Easter baskets a day early since we have an early church service in the morning! We don’t always give them Easter baskets, and we don’t do anything extravagant, but I’m sure they appreciate the chocolate! And Raelynn will like her Easter basket, too! Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 00:00 Intro 00:52 Digging…