Today started out pretty rough. But it turned out to be a beautiful, beautiful day. If there’s one thing that my special needs child has taught me, it’s to overcome obstacles. Always have hope. AFFILIATE LINKS Fun stuff Raelynn uses: ✔️ Galaxy Projecter: amzn.to/3yQyR8x ✔️ Towel Warmer: amzn.to/3uIQioa ✔️ Travel Pillow: amzn.to/3pbsgRv Must-have medical gadgets/supplies:…
All posts by chris
How to Help Someone Having a Seizure // Video of 2 Seizures
Having helped my daughter through thousands of seizures, I share in this video how to help someone having a seizure. When someone is having a seizures, the most important way to help them is simply to make sure they’re safe. 00:00 Intro 00:07 How to Help Someone Who is Having a Seizure 04:09 First Seizure…
SHOPPING IN HER WHEELCHAIR! // Shop Locally for Great Deals!
Our town has a great place to shop locally! We call it the Clothes Closet, and you can buy clothes, furniture, and all kinds of household items. It even has a food pantry where many people can receive groceries for free! The Clothes Closet is quite special to our family. So today, I took Raelynn…
Two Seizures in a Day // Starting to Smile
Raelynn had two tonic-clonic seizures today. That’s a fairly normal day for her. But she also smiles every day. She loves her shaker vest! Finally, I had some exciting news about her YouTube channel. I was interviewed by TubeBuddy! It’s a great extension that helps me manage my YouTube channel. You can download it here…
Do strobe lights cause seizures? // MIRROR MAZE FUN!
Many people wonder if strobe lights trigger seizures. Our daughter has epilepsy, but strobe lights do not cause her to have seizures. Different people have different things that trigger their seizures. Strobe lights have never triggered seizures for Raelynn, so we weren’t at all worried about the strobe lights she saw in the mirror maze…
Tonic Clonic Seizure
This is a tonic clonic seizure video. Raelynn had this seizure a couple weeks ago. While almost no seizures are easy to watch, this one may be particularly difficult. Do not feel like you need to watch it. It is for educational purposes, whether it be for doctors, medical students, teachers, or parents who are…
What is Refractory Epilepsy? Can Anything Stop Her Seizures?
In this video, we answer the question, “What is refractory epilepsy?” Raelynn has tried many, many medications in the attempt to reduce or eliminate her seizures. Unfortunately, her doctors have come to the conclusion that she has refractory epilepsy (this is sometimes known as irretractable epilepsy). We also discuss various seizure treatments, including cbd and…
A bad seizure Raelynn had…
Raelynn had a bad seizure a few days ago. It started off very bad, but she eventually was able to rest afterwards. Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 Subscribe: youtube.com/channel/… 00:00 Intro 00:07 Video from today 01:51 Seizure A few playlists you may find helpful: ⏩ Seizures: youtube.com/watch?v=… ⏩ Assistive Equipment: youtube.com/watch?v=… ⏩ Medical Procedures: youtube.com/playlist… ⏩…
Raelynn having a seizure in bed // AND A NEW EXPERIENCE!
We often get video of Raelynn having a seizure in bed because this is the safest place for her to have seizures. Her bed is soft so there isn’t anything that could potentially hurt her if she were to hit it while having her seizure. Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 Subscribe: youtube.com/channel/… 00:00 Intro 00:05 Walking…
Special Needs Child Bedtime Routine // treatments, therapies, and meds
Raelynn has many disabilities, so this is a special needs child bedtime routine. Raelynn’s bedtime routine includes her breathing treatments, some therapy, and of course her meds. Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 Subscribe: youtube.com/channel/… 00:00 Intro 00:25 Breathing Treatments 02:04 Meds & Food 05:40 Hand Splints 07:18 We’re Not Perfect 07:41 Goodnight! A few playlists you…