A Day in the Life with Epilepsy // BE THANKFUL!

Raelynn had 2 seizures today. It’s so easy to focus on the negative. But it’s so much better to focus on good things. Always try to be thankful.

00:00 Intro
01:16 First Seizure
03:03 Second Seizure
04:10 Going to the Park!
05:49 Encouragement to Be Thankful


Fun stuff Raelynn uses:
✔️ Galaxy Projector: amzn.to/3yQyR8x
✔️ Towel Warmer: amzn.to/3uIQioa
✔️ Travel Pillow: amzn.to/3pbsgRv

Must-have medical gadgets/supplies:
✔️ Fingertip Pulse Ox: amzn.to/3i92oEr
✔️ Forehead Thermometer: amzn.to/2SIQlD3
✔️ Oil Sheets: amzn.to/3uGceAk

Over-the-counter meds Raelynn takes:
✔️ P5P: amzn.to/3vMBC8E
✔️ Melatonin: amzn.to/3vKzxKn
✔️ Vitamin D drops: amzn.to/3pbsqs5

Helpful accessibility things:
✔️ Wheelchair hook: amzn.to/3fFFkve
✔️ Gooseneck Tablet Holder: amzn.to/2SPYOEF

Install this Chrome extension to grow your YouTube channel.
✔️ TubeBuddy: ift.tt/3yK9dlL

Website: hopeandsunshine.tv
Instagram: ift.tt/2Pwxk52
Subscribe: youtube.com/channel/…

A few playlists you may find helpful:
⏩ Seizures: youtube.com/watch?v=…
⏩ Assistive Equipment: youtube.com/watch?v=…
⏩ Medical Procedures: youtube.com/playlist…
⏩ Living Life with Disabilities: youtube.com/playlist…


Raelynn has epileptic encephalopathy, global developmental delay, cerebral palsy, cortical vision impairment, and I could go on and on. In fact, I’ll go on a little more. Raelynn is quadriplegic. She has a gastro-jejunal (GJ) tube. She has a vagus nerve stimulator (vns). She uses a shaker vest, nebulizer, and a cough assist machine daily to help her breath better.

Raelynn’s been to the doctor more times than the rest of our family combined!

In this whole situation, if we were looking for hope in our circumstances, we honestly wouldn’t find much. Raelynn will probably always be in a wheelchair. She’ll probably always be fed via a food pump. She’ll probably never talk. And she has virtually no chance of getting better.

I can’t tell you how many times people have told me, “God can heal her.” I’ve actually come to find it a little funny when people say that (and I’m a pastor!). I know that God CAN heal her, and I know that God will heal her in eternity, but the point of life is not that we wouldn’t have difficult circumstances.

God is using Raelynn exactly as she is right now. I see how much I’m a better person because of Raelynn. I see the ways God has changed my family, the things He’s taught us, the people He’s put us in connection with, all because of Raelynn’s problems. When I see how much God uses her disabilities, I see that God takes the bad things, the hard things, the hopeless circumstances of our lives and brings beauty, goodness, and hope from them all.

That’s what this channel’s about.

We post videos of Raelynn’s life, seizures, and other disabilities to this channel three days a week (Monday, Wednesday, Friday).

If this sounds like something you could benefit from, please consider subscribing! Your subscription will help us keep making videos of Raelynn’s life and assistive technologies! ❤️


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