It was a beautiful day today! Even though Raelynn has seizures every day, we went for walks outside, and Abby proved that she can, in fact, use a camera. Join this channel to support what we do, and perks: youtube.com/channel/… Music by Angela Predhomme – Life Is Gonna Be Great! – ift.tt/3gSXXfn AFFILIATE LINKS Install…
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2 seizures // daily life with our medically complex child
Raelynn has seizures every day. That’s just part of daily life for her. But she’s also so strong! She gets through them, and she’s even able to smile and rest afterwards. Join this channel to support what we do, and perks: youtube.com/channel/… If you enjoyed the music today, check our my cousin’s band! Music by…
Getting Botox to Loosen Muscles
Raelynn can get very stiff, so she has to occasionally get Botox and Ethanol injections to loosen her muscles. These will also help her to feel better. So Abby took her into the hospital today to get them! Join this channel to support what we do, and perks: youtube.com/channel/… AFFILIATE LINKS Install this Chrome extension…
Bedtime Routine for Medically Complex Daughter
Putting Raelynn to bed can take a few extra steps, but things are finally returning to normal for her now that she’s recovered from Covid! In this video, I show just a few things we need to do Join this channel to support what we do, and perks: youtube.com/channel/… Music by Ashton Edminster – Break…
6 appointments and 3 seizures in 1 day
Raelynn can sometimes have a pretty demanding schedule. Today, she had 6 appointments at the hospital, and she managed to squeeze in 3 seizures as well. But she managed all of them like a champ! Join this channel to support what we do, and perks: youtube.com/channel/… Music by Franchesca – NVM – ift.tt/3j9ittJ AFFILIATE LINKS…
Packing and Travelling with a Medically Complex Child
Travelling with a medically complex child like Raelynn can take a bit longer. When our van was modified to allow her wheelchair to roll in, we lost any kind of trunk to the vehicle. So we can’t pack up completely until Raelynn is in the van. So we utilize the top of the van as…
Hiking and Camping with Epilepsy
Raelynn has epilepsy. She has seizures every day. But even with seizures, she’s a happy member of our family. Join this channel to support what we do, and perks: youtube.com/channel/… Music by Julia Pauletti – I Care More – ift.tt/3sqFpHU AFFILIATE LINKS Install this Chrome extension to grow your YouTube channel. ✔️ TubeBuddy: ift.tt/3yK9dlL Website:…
LOST IN THE WOODS?! // Accessible & Non-Accessible Trails
We had fun hiking on our vacation, but not all of the trails were handicap accessible at Shakamak State Park. So we got a little split up from the rest of our family at one point… Join this channel to support what we do, and perks: youtube.com/channel/… Music by Angela Predhomme – So Good to…
Staying in an Accessible Cabin for our “Camping” Vacation
We went to Shakamak State Park in Indiana for our vacation, and stayed in an accessible cabin. This is “roughing it” for our family! But we had a great time hiking, cooking food over our fires, and just playing games outside for a change. It was nice! Join this channel to support what we do,…
Moments in a Medically Complex Life
These are several moments throughout Raelynn’s day. Because she’s medically complex, she benefits from several treatments. This video shows a couple, but there are many more (see the assistive equipment playlist below). You’ll also see some of Raelynn’s seizures. She has them every day. But she always bounces back! Join this channel to support what…