Raelynn slept quite a bit of the day. It may have been because she had seizures so early in the day. They wore her out! But she did perk up in the evening bit. Join this channel to support what we do, and perks: youtube.com/channel/… Music by Christine Nguyen – Better Days – ift.tt/2YyRu2T AFFILIATE…
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Seizure // Suctioning // Walking & Talking about Nursing
It was another beautiful day for a walk! On our walk today, Abby and I talked about the nursing Raelynn gets at home, and also an opportunity for us to consider. Join this channel to support what we do, and perks: youtube.com/channel/… Music by Julia Pauletti – You Are Mine – ift.tt/3l3twVc AFFILIATE LINKS Install…
A Seizure on a Rainy Day
Life has ups and downs. Even though Raelynn has seizures, we always have hope. You can make it through the hard times, and come out even stronger on the other side. Join this channel to support what we do, and perks: youtube.com/channel/… Music by Emily McNally – Safety – ift.tt/3kRuzra AFFILIATE LINKS Install this Chrome…
1 Seizure // Genetic Test to find out why she has Epilepsy
We wish we knew why Raelynn is the way she is. So we periodically have her genes tested through exome sequencing to try to find answers. This is a fairly new procedure, and its helpfulness will increase over time. Join this channel to support what we do, and perks: youtube.com/channel/… 00:00 Intro 00:29 What is…
1 Seizure and 2 Walks on a Beautiful Day
It was a beautiful day today! Even though Raelynn has seizures every day, we went for walks outside, and Abby proved that she can, in fact, use a camera. Join this channel to support what we do, and perks: youtube.com/channel/… Music by Angela Predhomme – Life Is Gonna Be Great! – ift.tt/3gSXXfn AFFILIATE LINKS Install…
2 seizures // daily life with our medically complex child
Raelynn has seizures every day. That’s just part of daily life for her. But she’s also so strong! She gets through them, and she’s even able to smile and rest afterwards. Join this channel to support what we do, and perks: youtube.com/channel/… If you enjoyed the music today, check our my cousin’s band! Music by…
Getting Botox to Loosen Muscles
Raelynn can get very stiff, so she has to occasionally get Botox and Ethanol injections to loosen her muscles. These will also help her to feel better. So Abby took her into the hospital today to get them! Join this channel to support what we do, and perks: youtube.com/channel/… AFFILIATE LINKS Install this Chrome extension…
Bedtime Routine for Medically Complex Daughter
Putting Raelynn to bed can take a few extra steps, but things are finally returning to normal for her now that she’s recovered from Covid! In this video, I show just a few things we need to do Join this channel to support what we do, and perks: youtube.com/channel/… Music by Ashton Edminster – Break…
6 appointments and 3 seizures in 1 day
Raelynn can sometimes have a pretty demanding schedule. Today, she had 6 appointments at the hospital, and she managed to squeeze in 3 seizures as well. But she managed all of them like a champ! Join this channel to support what we do, and perks: youtube.com/channel/… Music by Franchesca – NVM – ift.tt/3j9ittJ AFFILIATE LINKS…
Packing and Travelling with a Medically Complex Child
Travelling with a medically complex child like Raelynn can take a bit longer. When our van was modified to allow her wheelchair to roll in, we lost any kind of trunk to the vehicle. So we can’t pack up completely until Raelynn is in the van. So we utilize the top of the van as…