Raelynn had several doctor’s appointments today, and we got a little bad news at one of them. It’s not causing her any pain, but it is something we will need to deal with soon. Join this channel to support what we do, and get perks: youtube.com/channel/… AFFILIATE LINKS Install this Chrome extension to grow your…
All posts by chris
The PERFECT Wheelchair-Accessible Van System!
We love Raelynn’s wheelchair van! It’s really the perfect system because it’s so easy to get her in and out quickly. It uses the QLK-150 made by Q’STRAINT, and we’re so glad we had this system installed in the van! Check out Super Family Since 2015! youtube.com/channel/… Join this channel to support what we do,…
2 Seizures // Spending the Day with My Special Needs Daughter
I got to mostly just hang out with my daughter Raelynn today. After taking care of her morning routine, she had a couple seizures, but then we also went outside for a bit! Join this channel to support what we do, and get perks: youtube.com/channel/… Music: Christine Smit / Go On Together / courtesy of…
Seizures, Suctioning, and a Walk around our House
It’s rare, but I actually caught how Raelynn’s VNS stopped a small seizure in this video. It really works! We’ve seen this happen many, many times, but it’s rare to be able to record it because it happens so fast. Subscribe to Abby’s new channel! youtube.com/channel/… Join this channel to support what we do, and…
Raelynn smiles, and so can you! // A nice walk after a hard day
Despite many medical and physical limitations, Raelynn still smiles. Having obstacles in life doesn’t mean that we should throw in the towel. It just means that we have an opportunity keep on going, and to look at the brighter side. Join this channel to support what we do, and perks: youtube.com/channel/… Music by Angela Predhomme…
2 Seizures // Tour of a Medically Complex Child’s Room
Our kids got their Easter baskets a day early since we have an early church service in the morning! We don’t always give them Easter baskets, and we don’t do anything extravagant, but I’m sure they appreciate the chocolate! And Raelynn will like her Easter basket, too! Join this channel to support what we do,…
4 Seizures // she slept all day!
Raelynn slept quite a bit of the day. It may have been because she had seizures so early in the day. They wore her out! But she did perk up in the evening bit. Join this channel to support what we do, and perks: youtube.com/channel/… Music by Christine Nguyen – Better Days – ift.tt/2YyRu2T AFFILIATE…
Seizure // Suctioning // Walking & Talking about Nursing
It was another beautiful day for a walk! On our walk today, Abby and I talked about the nursing Raelynn gets at home, and also an opportunity for us to consider. Join this channel to support what we do, and perks: youtube.com/channel/… Music by Julia Pauletti – You Are Mine – ift.tt/3l3twVc AFFILIATE LINKS Install…
A Seizure on a Rainy Day
Life has ups and downs. Even though Raelynn has seizures, we always have hope. You can make it through the hard times, and come out even stronger on the other side. Join this channel to support what we do, and perks: youtube.com/channel/… Music by Emily McNally – Safety – ift.tt/3kRuzra AFFILIATE LINKS Install this Chrome…
1 Seizure // Genetic Test to find out why she has Epilepsy
We wish we knew why Raelynn is the way she is. So we periodically have her genes tested through exome sequencing to try to find answers. This is a fairly new procedure, and its helpfulness will increase over time. Join this channel to support what we do, and perks: youtube.com/channel/… 00:00 Intro 00:29 What is…