All posts by chris

Sometimes we have to wear different roles as Raelynn’s caregivers. Not only do we put on the roles of parents, nurses, and doctors, we also take on the roles of advocates for Raelynn’s nurses. We want to make sure they are getting the best pay that they can, so that Raelynn will continue to get…

Raelynn recently got an oxygen concentrator because her oxygen level often dips down into the 80’s during the night. We’ve been going through a TON of oxygen tanks. So having an oxygen concentrator in our home will make certain aspects of Raelynn’s care much more streamlined. Of course, we’d love if Raelynn didn’t have oxygen…

Raelynn has epilepsy. Specifically, she has refractory epilepsy, which simply means that they have not been able to control her seizures through all of the things that they’ve tried, and trying more things likely would not be effective. That being said, Raelynn’s VNS has eliminated a LOT of her seizures. She isn’t have nearly as…

Raelynn has Cerebral Palsy, which often comes with things like spasticity and clubfoot. Raelynn wears AFOs to help with that. Raelynn recently had hip surgery, and her legs were casted in an A-frame in order to prevent her from undoing part of her surgery. She was casted all the way down to her toes because…

I just wanted to upload this video to celebrate that we hit 10,000 subscribers!! This is a clip from from our most recent livestream. Join this channel to support what we do, and get perks: youtube.com/channel/… Our Other YouTube channels: ▶️ Our Family’s channel: youtube.com/smalltow… ▶️ Abby’s channel: youtube.com/NurseAbb… ▶️ Amber’s channel: youtube.com/channel/… ▶️ Cory’s…

It was so fun to be able to talk with several of our subscribers! Thanks for joining us for our livestream! This was supposed to be a members-only livestream, but I apparently set it up wrong! Either way, I’m uploading it for all of our subscribers to be able to watch as well. I edited…

Raelynn has been having pain, probably due to her hip surgery in October. So we had an appointment to discuss what we could do about it. Join this channel to support what we do, and get perks: youtube.com/channel/… Our Other YouTube channels: ▶️ Our Family’s channel: youtube.com/smalltow… ▶️ Abby’s channel: youtube.com/NurseAbb… ▶️ Amber’s channel: youtube.com/channel/…

Being medically complex even impacts things like going to the dentist. Since Raelynn doesn’t eat by mouth, she has dental complications as well. Fortunately, these can generally be fixed. Join this channel to support what we do, and get perks: youtube.com/channel/… Our Other YouTube channels: ▶️ Our Family’s channel: youtube.com/smalltow… ▶️ Abby’s channel: youtube.com/NurseAbb… ▶️…

Abby went into great detail showing and explaining all of the meds that Raelynn gets at bedtime. She made this video originally to show to prospective nurses, but we thought it might be interesting to you as well! Join this channel to support what we do, and get perks: youtube.com/channel/… Our Other YouTube channels: ▶️…

We use Raelynn’s suction machine enough that we want it to be extremely quick to turn on and use. So we’ve figured out a couple hacks that help us to use it more efficiently. Join this channel to support what we do, and get perks: youtube.com/channel/… Our Other YouTube channels: ▶️ Our Family’s channel: youtube.com/smalltow…