Always have hope.
Raelynn had five seizures on Sunday. That’s more than she’s been having lately. . 👇 AND PLEASE SUBSCRIBE if you find this content helpful. youtube.com/channel/… The very beginning is usually the worst part of her seizures. And then, a lot of the time she’ll breathe heavily in order to catch her breath. After that, she’ll…
Raelynn spent the morning and early afternoon in the hospital for doctor’s appointments today! Nothing too exciting (which is good!). 👇 PLEASE SUBSCRIBE if you find this content helpful. youtube.com/channel/… The dentist said everything looked good! Raelynn doesn’t eat anything by mouth, and with her adult teeth starting to come in, we wanted to make…
Here’s a video of one of the seizures Raelynn had today. She ended up having 5 seizures today, which is more than she’s been having in the last couple weeks, but about average over the last year or so. . 👇 AND PLEASE SUBSCRIBE if you find this content helpful. youtube.com/channel/… Raelynn sometimes has “happy”…
We went to the beach in Florida a couple years ago! Having fun on the beach with a disabled child can take a little bit of planning. But it’s not too difficult. We just bring a tent! 👇 PLEASE SUBSCRIBE if you find this content helpful. 👇 youtube.com/channel/… This is the tent we use. It…
Raelynn had two seizures yesterday. This one was pretty upsetting for her. It may feel weird to “like” a video such as this, but it really does help us keep making videos of Raelynn’s life with seizures, which helps many parents who are going through similar things. 👇 AND PLEASE SUBSCRIBE if you find this…
Here’s a video of one of the seizures Raelynn had yesterday. Raelynn had a lot of difficulty breathing during and after this seizure. 02:02 – Difficulty breathing & gasping for breath It may feel weird to “like” a video such as this, but it really does help us keep making videos of Raelynn’s life with…
This is a video we recorded in 2013, just a few weeks after starting to foster Raelynn. This shows what Raelynn’s seizures looked like when she was 17 months old (she’s 8 years old now). I looked like she was having a painful seizure. It may feel weird to “like” a video such as this,…
Lifting a quadriplegic child can be difficult. But it’s also necessary when transferring a child to a wheelchair. 👇 AND PLEASE SUBSCRIBE if you find this content helpful. 👇 youtube.com/channel/… One of the most important things to remember when lifting a quadriplegic child is that they can’t help you. Normally, when you lift someone, they…
This is a video about treating pain in quadriplegic children. Raelynn sometimes has pain, and we don’t know why. Sometimes we can feel powerless when treating pain in our quadriplegic daughter. It may feel weird to “like” a video such as this, but it really does help us keep making videos of Raelynn’s life with…
This is what Raelynn’s seizures looked like when she was 1 year and 5 months old (she’s 8 years old now). This was a very brief seizure. It may feel weird to “like” a video such as this, but it really does help us keep making videos of Raelynn’s life with seizures, which helps many…