Always have hope.
Since Raelynn has often needed extra Oxygen lately, we’ve been more diligent to give her a Nebulizer treatment every day. Specifically, she gets Budesonide through her nebulizer. This helps to open up her airway and prevent irritation and swelling, this helping her breathe better. In addition to the cough assist and shaker vest, this has…
We never know when Raelynn will have her seizures. She went a whole day without having any tonic clonic seizures, and then she had two just after midnight. Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 00:00 Intro 00:58 First Seizure 05:56 Second Seizure 08:21 Goodnight! 👇 AND PLEASE SUBSCRIBE if you find this content helpful. youtube.com/channel/… A few…
Raelynn has been having trouble sleeping, so I thought I’d dig through Raelynn’s toys to find something that may help her sleep better an night. I’ve also included video from a seizure Raelynn had on May 23. Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 00:00 Intro 00:42 Finding Raelynn’s Toy 02:38 Always have hope! 03:07 Seizure 08:38 Showing…
In this video, we tell Raelynn’s adoption story. Raelynn has had medical complexities since we started fostering her, but we were always willing to adopt her. Adopting Raelynn through the foster care system had its advantages and disadvantages, but we’re glad we went that route. Part 1: youtu.be/EidKvC9bYZM Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 00:00 – Intro…
I thought I’d update everyone about how many seizures Raelynn has been having. I might make this a thing. #shorts #seizures
The cough assist has been helping Raelynn breathe better. If helps her learn to take deeper breaths. But she doesn’t like it that much! Follow Raelynn on Instagram! ift.tt/2Pwxk52 00:00 – Intro/Instagram Announcement 00:50 – Getting in the Stander! 02:37 – Cough Assist 05:30 – Going to see the doctor (without Raelynn) 06:57 – Cough…
Raelynn’s oxygen has been dipping down lately more than usual, but we hope that we have a good plan to strengthen her lungs again. She will be using her cough assist machine to learn to take deeper breaths. 00:00 – Intro 01:50 – Vision therapy 02:25 – Vlog (Caring for a Special Needs Child) 05:41…
Today I customized the things Raelynn can say using the WinSlate Enable Eyes device that she’s borrowing. Raelynn has been using the Symbol Links app in the Grid3 program, but we needed to make the possibilities more relevant to her. 00:00 – Intro 00:39 – Customizing Symbol Links 06:32 – Testing it out 07:47 –…
Just a quick update on Raelynn’s seizures. #shorts
It was a LONG, busy day at the hospital today. Raelynn had several doctor’s appointments. But it was also good and very productive! 00:00 – Intro 01:46 – Travelling 03:43 – First Appointment 04:37 – Second Appointment 04:56 – Third Appointment 05:18 – Going Home! 05:56 – Seizure in the van 07:40 – Finally home!…