Always have hope.
Raelynn is a medically complex child. That being the case, she has several daily routines. She has several medically necessary assistive technologies, such as a nebulizer, cough assist, and shaker vest every day. Her care is complex. She also has seizures every day. But as our child, she also just lives life as a part…
Raelynn had a seizure in her wheelchair that needed suctioning. Her wheelchair isn’t the safest place for her to have a seizure, since there are hard bars that her arms could hit. But she was okay during this seizure. When she’s in her chair during a seizure, it’s even more important for us to monitor…
In this video, I explained why and how to use a shaker vest. I then proceed to show a full shaker vest treatment. Raelynn uses a shaker vest to help her breathe better. I explain that a shaker vest treatment loosens mucus that may be in her airway and/or lungs. Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 Subscribe:…
Mindflex is a game that Raelynn can play well with others, because she doesn’t need to use her hands, eyes, or mouth at all! Today, she challenged a friend! Go check out his channel! Lightspeed: youtube.com/channel/… Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 Subscribe: youtube.com/channel/… 00:00 Intro 01:48 Playing Mindflex 05:10 Breathing treatments 06:38 A little talk 07:25…
Raelynn usually has at least one or two seizures at nighttime, right as she’s doing to bed. We often call them her “bedtime seizures.” That hasn’t changed, but she is doing much better breathing. Her breathing treatments have been very helpful! Buy a t-shirt: ift.tt/3su8CAb Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 Subscribe: youtube.com/channel/… 00:00 Intro 00:14 Breathing…
We’ve tried a few tablet holders so that Raelynn can watch shows on her Kindle in bed. Some of them are clunky and hard to use. But the Lamicall Gooseneck Tablet Mount is easy to use and versatile. As far as we can tell, it’s the best tablet holder & flexible arm stand available! Buy…
Raelynn’s birthday was last week, but we celebrated with friends and family today! After lunch, we went to the movie theater, which we rented for our group only. It was so fun! Raelynn also tasted a bit of lemon icing, and opened a couple presents. It was a great day! Buy a t-shirt! ift.tt/32PO4r1 Website:…
It was such a beautiful day today, we just had to go for a walk with Raelynn in her wheelchair! Raelynn also has a seizure in this video. Plus, for Raelynn’s biggest fans, I have a question for you at the end of the video. Let me know what you think. Buy a t-shirt! ift.tt/3vdfOCv…
Today was Raelynn’s birthday! She still needed to get her breathing treatments, and she still had seizures, but it was a special day because she had a Zoom call with her biological parents! Buy a t-shirt! ift.tt/3acJLuC Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 Subscribe: youtube.com/channel/… 00:00 Intro 00:24 Breathing Treatments 01:42 Happy Birthday Surprise! 02:16 Seizure (clips)…
Raelynn got some mail from another YouTube family, the Bogues! We unbox it in this video. You should definitely check out their channel, they’re great! The Bogues: youtube.com/channel/… Buy a t-shirt! ift.tt/3su8CAb 00:00 Intro 00:07 Opening Mail 04:12 Seizure 09:38 Closing Thoughts Raelynn also has a seizure. I always feel a little weird including video…