Does she still have an infection?

Does she still have an infection?

We went to see Raelynn’s infectious disease team to talk about whether or not we will continue her antibiotics. She had two bad pseudomonas infections, and we definitely don’t want to see it come back. I love making videos of Raelynn’s life to educate and give you hope. If you would like to support our…

Life is BUSY! // livestream replay

Life is BUSY! // livestream replay

We tried out a different location for our livestream, but I’m not sure it was any better. I definitely need to bring my better mic over there and try to work on better lighting. Other than that, we talked about how busy life as been lately! I love making videos of Raelynn’s life to educate…

Why do Epileptic Nystagmus Seizures make her smile?

Why do Epileptic Nystagmus Seizures make her smile?

We’ve been noticing a different kind of seizure activity in Raelynn lately. Do you know what it’s called? Join this channel to support what we do, and get perks: youtube.com/channel/… Our Other YouTube channels: ▶️ Our Family’s channel: youtube.com/smalltow… ▶️ Abby’s channel: youtube.com/NurseAbb… ▶️ Amber’s channel: youtube.com/channel/… ▶️ Cory’s channel: youtube.com/CoryTheC… ▶️ Games With the…

Winning at Life even when Tired & Lazy, a vlog

Winning at Life even when Tired & Lazy, a vlog

Life is more than accomplishing your goals, but it’s also good to plan, and work towards your plans. Join this channel to support what we do, and get perks: youtube.com/channel/… Our Other YouTube channels: ▶️ Our Family’s channel: youtube.com/smalltow… ▶️ Abby’s channel: youtube.com/NurseAbb… ▶️ Amber’s channel: youtube.com/channel/… ▶️ Cory’s channel: youtube.com/CoryTheC… ▶️ Games With the…