All posts by chris

Raelynn rested and listened to music during her IVIG treatment this week. I encourage you to rest for a few minutes, too! 👍🏻 LIKE THIS VIDEO!!! It helps us keep making videos of Raelynn’s life with disabilities, which helps many parents who are going through similar things. It’s important to get some rest. What better…

We had a pre-op appointment for Raelynn a couple weeks back in which we went over all the details for her upcoming spine surgery. I recorded a few random clips of the appointment, not so much about talking about the surgery itself, but just making sure her doctors know Raelynn well and are completely prepared…

As you’ll see in this video, Raelynn had quite a bit of trouble breathing during this seizure. Her doctors have told us that this is because during her seizure, sometimes her airway is a bit constricted. Skip to 00:55 to see the seizure. . Raelynn’s trouble breathing came and went. After she sounded bad for…

This is another seizure Raelynn had. What are you thinking as you watch these videos of Raelynn’s seizures? Skip to 00:45 if you just want to see the video of the seizure Raelynn had. . As I stand by Raelynn throughout her seizures, I just kind of hope her seizure will end quickly and won’t…

As we get closer to Raelynn’s spine surgery, she’s had more doctors’ appointments pertaining to her various issues in order to hear their concerns about surgery. This was an appointment with pulmonary, which deals with her respiratory system. . So this video probably won’t appeal to a lot of people, but if you’re curious about…

This is a seizure Raelynn had about a month ago. For a period of about two weeks, Raelynn was having more seizures than usual. If you just want to see the video of the seizure Raelynn had, skip to 00:58. . For that period of time, Raelynn was having as many as 8 tonic clonic…

This is a seizure Raelynn had recently. Before I show the video, real quick, I want to ask you if there are other kinds of videos that would be helpful to you. If you just want to see the seizure, skip to 00:34. . I’ve uploaded dozens of Raelynn’s seizure to this channel, and I’ll…

This video shows the process we go through in getting Raelynn from her bed to the van. (I sped up the video during some of the monotonous parts) . A few weeks ago, Raelynn was having far more seizures than usual. So we made an appointment with her neurologist to see if there was anything…

This is a seizure that Raelynn had in her wheelchair recently. After I show the video of the seizure, I’ll share a couple thoughts about it. 00:00 Introduction 00:14 Raelynn’s Seizure 06:19 Closing Thoughts . So I want to share a couple thoughts. First, this seizure started off as kind of a bad one, but…

This is a bad seizure that Raelynn had because it was more convulsive than many of her other seizures. Watch to the end to hear me talk about it a bit. 00:00 Introduction 00:09 Raelynn’s Seizure 08:13 Closing Thoughts . This seizure was a bad one not just because of its length, but because it…