Raelynn was able to transition to the pediatric bridge hospital! Her pain has been doing very well. She has diarrhea, but it’s getting better. But we enjoyed the ambulance ride to the new hospital! Join this channel to support what we do, and get perks: youtube.com/channel/… Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 TikTok: ift.tt/3jbWguT? Facebook: ift.tt/3lOTAou Subscribe:…
All posts by chris
Post Hip Surgery Update // Still in the Hospital // SHE SAT UP!
Raelynn was able to sit up for the first time since surgery! She’s not in much pain, but she’s still having issues with her bowels. But she is enjoying watching TV and playing on her Tobii Eye Gaze! Join this channel to support what we do, and get perks: youtube.com/channel/… Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 TikTok:…
Seizure in the Hospital // recovering from hip surgery
Raelynn is continuing to recover in the hospital from her hip surgery, but she’s started to have seizures again. Anesthesia meds keep seizures away for a day or two after surgery, but they eventually wear off. Join this channel to support what we do, and get perks: youtube.com/channel/… Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 TikTok: ift.tt/3jbWguT? Facebook:…
Recovering in the Hospital after Surgery // it’s a new day
Raelynn was doing very well the day after her hip surgery. She didn’t seem to be in a lot of pain, and was able to even watch a little TV. Considering that it was major surgery, that’s not too bad at all! Join this channel to support what we do, and get perks: youtube.com/channel/… Website:…
Having Hip Surgery // it was a long day.
Raelynn had to have hip surgery because she’s been having more and more pain. This surgery should save her from even more pain in the future. No surgery is fun to have, but we’re trying to do what’s best for her. Join this channel to support what we do, and get perks: youtube.com/channel/… Website: hopeandsunshine.tv…
A Seizure & an Update on Surgery
Raelynn had a pretty good day on Sunday! I wanted to give an update on her hip surgery at the end of the video today. Raelynn is so strong! Join this channel to support what we do, and get perks: youtube.com/channel/… Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 TikTok: ift.tt/3jbWguT? Facebook: ift.tt/3lOTAou Subscribe: youtube.com/channel/… AFFILIATE LINKS ✔️ TubeBuddy:…
1 Seizure // She’s Having Less Seizures!
Raelynn has been having less seizures due to a recent increase in Clonazepam at bedtime. Also, she was just in a great mood today! Join this channel to support what we do, and get perks: youtube.com/channel/… Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 TikTok: ift.tt/3jbWguT? Facebook: ift.tt/3lOTAou Subscribe: youtube.com/channel/… AFFILIATE LINKS ✔️ TubeBuddy: ift.tt/3yK9dlL ✔️ Epidemic Sound: ift.tt/3BIynSA…
Raelynn tried ICE CREAM!
We went to a Mexican Ice Cream shop while we were on vacation recently. We loved it! But we’re not sure Raelynn enjoyed the ice cream… Join this channel to support what we do, and get perks: youtube.com/channel/… Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 TikTok: ift.tt/3jbWguT? Facebook: ift.tt/3lOTAou Subscribe: youtube.com/channel/… AFFILIATE LINKS ✔️ TubeBuddy: ift.tt/3yK9dlL ✔️ Epidemic…
Will She Learn to Talk? // Using a Tobii Dynavox Eye Gaze
Raelynn got another trial of a Tobii Dynavox Eye Gaze device! We’re really hopeful that this kind of technology will allow Raelynn to eventually be able to communicate with us in very meaningful ways. I can’t wait! Join this channel to support what we do, and get perks: youtube.com/channel/… Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 TikTok: ift.tt/3jbWguT?…
Early Morning Doctor’s Appointment // morning routine
Raelynn’s doctors were able to examine her, and assured us that she’s doing just fine. Raelynn’s blockage is all clear! This is the issue we’re talking about: youtu.be/wmKufF23Fpk We also talked about it more in this video: youtu.be/0ZOFIi3PQiY It was most likely not blood pooling inside her at all, but discharge (they look similar in…