Raelynn had her entire genome mapped a few years ago so that they could see what they can learn about her condition. This will hopefully help them eventually identify effective treatments for people like her. Buy my book! amzn.to/3xxcNiS Raelynn’s PO Box: Raelynn Huff PO Box 219 Nokomis, IL 62075 Join this channel to support…
All posts by chris
THIRD CHRISTMAS GIVEAWAY WINNER!
Join our live as we select a winner for our giveaway this week! 📘 Buy my book! amzn.to/3xxcNiS 👕 Buy a t-shirt! ift.tt/3su8CAb 📀 Buy Willy Wonka! amzn.to/3m5HJ54 🐼 Buy a panda! amzn.to/3dS44yU 💜 Join this channel! youtube.com/channel/… Raelynn’s PO Box: Raelynn Huff PO Box 219 Nokomis, IL 62075 Our Other YouTube channels: ▶️ Our…
Letting Her Choose // non-verbal cerebral palsy
Even though she has non-verbal cerebral palsy, Raelynn can made choices by looking at the thing that she wants. But an eye gaze will allow her to choose between many more things, much more easily! Buy my book! amzn.to/3xxcNiS Raelynn’s PO Box: Raelynn Huff PO Box 219 Nokomis, IL 62075 Join this channel to support…
THIRD CHRISTMAS GIVEAWAY!
Join our live as we announce what we’ll be giving away this week! Be sure to refresh the page and leave a comment after the live is over to be entered in for the giveaway! 📘 Buy my book! amzn.to/3xxcNiS 👕 Buy a t-shirt! ift.tt/3su8CAb 📀 Buy Willy Wonka! amzn.to/3m5HJ54 🐼 Buy a panda! amzn.to/3dS44yU…
Dealing with Pain & Tornados
Raelynn has been in a little more pain lately. We’re not sure what’s going on, but we’ll be talking with her doctors about it more on Monday. Buy my book! amzn.to/3xxcNiS Raelynn’s PO Box: Raelynn Huff PO Box 219 Nokomis, IL 62075 Join this channel to support what we do, and get perks: youtube.com/channel/… Website:…
Early Christmas Cards & Gifts! // VNS Adjustment
Today, we checked Raelynn’s PO Box, and opened her first Christmas mail! Raelynn also had a quick doctor’s visit to adjust her VNS, which has helped a TON with her seizures. Merry Christmas! Buy my book! A Parent’s Guide to Managing Seizures amzn.to/3xxcNiS Raelynn’s PO Box: Raelynn Huff PO Box 219 Nokomis, IL 62075 Join…
Hip Surgery Follow-Up Appointments // X-rays, etc
Raelynn had a day of doctors’ appointments again! Overall, she’s continuing to do well after her hip surgery. We did think she would get her cast completely off this week, but it looks like she may need it a bit longer. Buy my book! amzn.to/3xxcNiS Raelynn’s PO Box: Raelynn Huff PO Box 219 Nokomis, IL…
SECOND CHRISTMAS GIVEAWAY WINNER!
Join our live as we announce the winner of this week’s giveaway! Buy my book! amzn.to/3xxcNiS Raelynn’s PO Box: Raelynn Huff PO Box 219 Nokomis, IL 62075 Join this channel to support what we do, and get perks: youtube.com/channel/… Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 TikTok: ift.tt/3jbWguT? Facebook: ift.tt/3lOTAou Subscribe: youtube.com/channel/… AFFILIATE LINKS ✔️ TubeBuddy: ift.tt/3yK9dlL ✔️…
Saying “Goodbye” to Her Smartbox
We had to send Raelynn’s Smartbox Grid Pad eye gaze device back since it was only a short trial. But we hope to get her a WinSlate again soon! Buy my book! amzn.to/3xxcNiS Raelynn’s PO Box: Raelynn Huff PO Box 219 Nokomis, IL 62075 Join this channel to support what we do, and get perks:…
SECOND CHRISTMAS GIVEAWAY!
Join our live as we announce what we’ll be giving away this week! Be sure to leave a comment after the live is over to be entered in for the giveaway! Buy my book! amzn.to/3xxcNiS Raelynn’s PO Box: Raelynn Huff PO Box 219 Nokomis, IL 62075 Join this channel to support what we do, and…