We wanted to give a fairly thorough review of our daughter’s stay at Ranken Jordan Pediatric Bridge Hospital in St. Louis, MO. In short, we had a great experience! My Book: “A Parent’s Guide to Managing Seizures” amzn.to/3xxcNiS Join this channel to support what we do, and get perks: youtube.com/channel/… Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 TikTok:…
All posts by chris
We need a ceiling lift.
We’ve been transferring Raelynn using a sheet, blanket, or her new mesh since she got home from the hospital. It mostly works great, but you need two people to do it. So we’re hoping to eventually get a ceiling lift. My Book: “A Parent’s Guide to Managing Seizures” amzn.to/3xxcNiS Join this channel to support what…
She’s having less seizures!
Raelynn used to have as many as 5 to 8 seizures per day, but lately she’s been having much fewer! We don’t know why yet, but we will hopefully continue to reduce her seizures either through meds or other things. Buy my book! amzn.to/3xxcNiS Raelynn’s PO Box: Raelynn Huff PO Box 219 Nokomis, IL 62075…
Sleepless nights with our medically complex daughter
We’ve had many sleepless nights lately. Raelynn was doing incredibly well following her hip surgery in October, but now she’s been having some pain. It hasn’t been extremely bad, and it’s not constant, but it is concerning. And it’s caused us to have some very long nights. Buy my book! amzn.to/3xxcNiS Raelynn’s PO Box: Raelynn…
Opening MORE CHRISTMAS MAIL!
Thank you so much for sending Raelynn and our family gifts this Christmas season! It’s been so fun to open them! I hope that we’ve been a blessing to you just like you’ve been a blessing to us! Buy my book! amzn.to/3xxcNiS Raelynn’s PO Box: Raelynn Huff PO Box 219 Nokomis, IL 62075 Join this…
A CHRISTMAS Day in the Life of a Medically Complex Child
Raelynn had hip surgery in October and has generally recovered very well from it, but she still sometimes has good days and bad days. On her bad days, she has pain off and on, and often needs additional pain meds. Buy my book! amzn.to/3xxcNiS Raelynn’s PO Box: Raelynn Huff PO Box 219 Nokomis, IL 62075…
TRYING POP ROCKS and CHRISTMAS EVE STOCKINGS!
We had a great Christmas Eve! The kids got presents from their Christmas stockings and Raelynn tried some pop rocks! We hope your Christmas season is a beautiful reminder of God’s love for you and your family. Buy my book! amzn.to/3xxcNiS Raelynn’s PO Box: Raelynn Huff PO Box 219 Nokomis, IL 62075 Join this channel…
OUR LAST CHRISTMAS GIVEAWAY WINNER!
Join our live as we select a winner for our giveaway this week! 📘 Buy my book! amzn.to/3xxcNiS 👕 Buy a t-shirt! ift.tt/3su8CAb 📀 Buy Willy Wonka! amzn.to/3m5HJ54 🐼 Buy a panda! amzn.to/3dS44yU 🛏️ Buy a panda blanket! amzn.to/3JeZ9Gv 💜 Join this channel! youtube.com/channel/… Raelynn’s PO Box: Raelynn Huff PO Box 219 Nokomis, IL 62075…
New leg braces & a new haircut!
Raelynn finally got her casts off! She was given new leg braces to wear, but she can take them off as much as she’ll tolerate. She also got a new haircut! Buy my book! amzn.to/3xxcNiS Raelynn’s PO Box: Raelynn Huff PO Box 219 Nokomis, IL 62075 Join this channel to support what we do, and…
OUR LAST CHRISTMAS GIVEAWAY!
Join our live as we announce what we’ll be giving away this week! Be sure to refresh the page and leave a comment after the live is over to be entered in for the giveaway! 📘 Buy my book! amzn.to/3xxcNiS 👕 Buy a t-shirt! ift.tt/3su8CAb 📀 Buy Willy Wonka! amzn.to/3m5HJ54 🐼 Buy a panda! amzn.to/3dS44yU…