Raelynn still has seizures almost every day. Here are a few she’s had in the last few months. My Book: “A Parent’s Guide to Managing Seizures” amzn.to/3xxcNiS Join this channel to support what we do, and get perks: youtube.com/channel/… Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 TikTok: ift.tt/3jbWguT? Facebook: ift.tt/3lOTAou Subscribe: youtube.com/channel/… A few playlists you may find…
All posts by chris
Going back to church! // Still Recovering
Raelynn was able to go back to church in person in December (once). She’s still recovering from surgery, and has good days and bad days. My Book: “A Parent’s Guide to Managing Seizures” amzn.to/3xxcNiS Join this channel to support what we do, and get perks: youtube.com/channel/… Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 TikTok: ift.tt/3jbWguT? Facebook: ift.tt/3lOTAou Subscribe:…
To Our Medically Complex Daughter While We’re Gone
Raelynn is staying at another bridge hospital while Abby and me are on vacation. So we all made her a special video for her to watch every day. My Book: “A Parent’s Guide to Managing Seizures” amzn.to/3xxcNiS Join this channel to support what we do, and get perks: youtube.com/channel/… Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 TikTok: ift.tt/3jbWguT?…
Cancelling our Vacation Plans?
Having a medically complex daughter means that our plans are almost always very tentative. If her health declines, we may not be able to go on our vacation. My Book: “A Parent’s Guide to Managing Seizures” amzn.to/3xxcNiS Join this channel to support what we do, and get perks: youtube.com/channel/… Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 TikTok: ift.tt/3jbWguT?…
Our experience at Ranken Jordan Pediatric Hospital
We wanted to give a fairly thorough review of our daughter’s stay at Ranken Jordan Pediatric Bridge Hospital in St. Louis, MO. In short, we had a great experience! My Book: “A Parent’s Guide to Managing Seizures” amzn.to/3xxcNiS Join this channel to support what we do, and get perks: youtube.com/channel/… Website: hopeandsunshine.tv Instagram: ift.tt/2Pwxk52 TikTok:…
We need a ceiling lift.
We’ve been transferring Raelynn using a sheet, blanket, or her new mesh since she got home from the hospital. It mostly works great, but you need two people to do it. So we’re hoping to eventually get a ceiling lift. My Book: “A Parent’s Guide to Managing Seizures” amzn.to/3xxcNiS Join this channel to support what…
She’s having less seizures!
Raelynn used to have as many as 5 to 8 seizures per day, but lately she’s been having much fewer! We don’t know why yet, but we will hopefully continue to reduce her seizures either through meds or other things. Buy my book! amzn.to/3xxcNiS Raelynn’s PO Box: Raelynn Huff PO Box 219 Nokomis, IL 62075…
Sleepless nights with our medically complex daughter
We’ve had many sleepless nights lately. Raelynn was doing incredibly well following her hip surgery in October, but now she’s been having some pain. It hasn’t been extremely bad, and it’s not constant, but it is concerning. And it’s caused us to have some very long nights. Buy my book! amzn.to/3xxcNiS Raelynn’s PO Box: Raelynn…
Opening MORE CHRISTMAS MAIL!
Thank you so much for sending Raelynn and our family gifts this Christmas season! It’s been so fun to open them! I hope that we’ve been a blessing to you just like you’ve been a blessing to us! Buy my book! amzn.to/3xxcNiS Raelynn’s PO Box: Raelynn Huff PO Box 219 Nokomis, IL 62075 Join this…
A CHRISTMAS Day in the Life of a Medically Complex Child
Raelynn had hip surgery in October and has generally recovered very well from it, but she still sometimes has good days and bad days. On her bad days, she has pain off and on, and often needs additional pain meds. Buy my book! amzn.to/3xxcNiS Raelynn’s PO Box: Raelynn Huff PO Box 219 Nokomis, IL 62075…