All posts by chris

Raelynn’s physical therapy is going well. She had hip surgery in October 2021, which caused her a lot of pain, but she’s finally recovering from it and making progress. I love making videos of Raelynn’s life to educate and give you hope. If you would like to support our work so that we can continue…

Thanks for joining us for our May livestream! We’re going to talk about how busy life can sometimes be! If you’d like to be able to video chat with us next month, make sure you sign up as a member! youtube.com/channel/… Our Other YouTube channels: ▶️ Our Family’s channel: youtube.com/smalltow… ▶️ Abby’s channel: youtube.com/NurseAbb… ▶️…

We’ve tried many pulse ox’s over the years, and we’re pretty sure which one we like the most. Amazon affiliate links: 1. Contec Pulse Ox: amzn.to/39eV3kc 2. Wellue Pulse Ox: amzn.to/3Plf1ug 3. Zacurate Pulse Ox: amzn.to/3w68g7Y I love making videos of Raelynn’s life to educate and give you hope. If you would like to support…

You gather certain information when you’re part of a medically complex family! And some of it’s actually useful even if you’re not! The July Effect: ift.tt/zb3ZxlM I love making videos of Raelynn’s life to educate and give you hope. If you would like to support our work so that we can continue sharing Raelynn’s life…

Raelynn got a wheelchair tent for her birthday to shield her from rain and sun when we go for walks, so we finally got a change to test it out in the rain! And Abby had to test it out, too! The tent (affiliate link): amzn.to/373bG1v I love making videos of Raelynn’s life to educate…

Gelastic seizures are partial seizures that appear to make the person laugh or smile. Medical professionals are still determining why they do this. I love making videos of Raelynn’s life to educate and give you hope. If you would like to support our work so that we can continue sharing Raelynn’s life with you for…

We went to see Raelynn’s infectious disease team to talk about whether or not we will continue her antibiotics. She had two bad pseudomonas infections, and we definitely don’t want to see it come back. I love making videos of Raelynn’s life to educate and give you hope. If you would like to support our…

Today was frustrating! But it doesn’t do much good to just be frustrated. Choose to be positive! I love making videos of Raelynn’s life to educate and give you hope. If you would like to support our work so that we can continue sharing Raelynn’s life with you for years to come, you can do…

We tried out a different location for our livestream, but I’m not sure it was any better. I definitely need to bring my better mic over there and try to work on better lighting. Other than that, we talked about how busy life as been lately! I love making videos of Raelynn’s life to educate…

Raelynn has osteoporosis, which causes her to have soft bones and therefore break bones easily. She has broken bones from simple range of motion. So it was important to seek out methods to strengthen her bones, even if they have what many people would consider to be undesirable side effects. I love making videos of…