Eye gazes such as the Tobii Dynavox and WinSlate are great devices, but I wanted to try this free app to see if it was worth using. Get our newsletter! ift.tt/9LUQtFR I love making videos of Raelynn’s life to educate and give you hope. If you would like to support our work so that we…
All posts by chris
Bad news about her seizures…
It’s gradually been getting worse, but we’re still hopeful that we can find a good solution to help her. Get our newsletter! ift.tt/SzMEGaO I love making videos of Raelynn’s life to educate and give you hope. If you would like to support our work so that we can continue sharing Raelynn’s life with you for…
She’s having difficulty breathing…
We have lots of tools to help our daughter when she’s having respiratory issues. Fortunately, her oxygen level is still high, so she’s doing okay. Get our newsletter! ift.tt/SzMEGaO I love making videos of Raelynn’s life to educate and give you hope. If you would like to support our work so that we can continue…
The Christmas Program took her breath away!
We’re so glad we had what she needed with us! And we’re glad we all enjoyed the Christmas program! Get our newsletter! ift.tt/gFutA3j I love making videos of Raelynn’s life to educate and give you hope. If you would like to support our work so that we can continue sharing Raelynn’s life with you for…
WE’RE EXHAUSTED FROM LIFE!
Raelynn apparently was tired from a long day, and so was I! Get our newsletter! ift.tt/gFutA3j I love making videos of Raelynn’s life to educate and give you hope. If you would like to support our work so that we can continue sharing Raelynn’s life with you for years to come, you can do so…
Her suction machine BROKE (when we really needed it)
Raelynn’s suction machine just wouldn’t suck this evening, which kind of sucked. So I had to take a little trip to get it going again… Get our newsletter! ift.tt/5xgSOvI I love making videos of Raelynn’s life to educate and give you hope. If you would like to support our work so that we can continue…
YOU’LL NEVER GUESS HOW MANY PANDAS SHE HAS!
Raelynn has pandas all over her room! Can you guess how many she has! (I couldn’t!) Get our newsletter! ift.tt/NpfL70b I love making videos of Raelynn’s life to educate and give you hope. If you would like to support our work so that we can continue sharing Raelynn’s life with you for years to come,…
Shower time is time for teamwork!
Abby and I help Raelynn as a team. Abby gives Raelynn a shower, then I clean up too! Get our newsletter! ift.tt/NpfL70b I love making videos of Raelynn’s life to educate and give you hope. If you would like to support our work so that we can continue sharing Raelynn’s life with you for years…
What does she think about food??
Raelynn is tube fed. She never eats by mouth. But we often wonder what she thinks about food, and what she’s thinking when she sees us eating. Get our newsletter! ift.tt/5uL4BJq I love making videos of Raelynn’s life to educate and give you hope. If you would like to support our work so that we…
CHECK OUT THIS HUGE GRINCH!
This is probably our favorite Christmas decoration right now! It’s so fun! Get our newsletter! ift.tt/5uL4BJq I love making videos of Raelynn’s life to educate and give you hope. If you would like to support our work so that we can continue sharing Raelynn’s life with you for years to come, you can do so…