A seizure from Sunday // plus an update on Raelynn’s seizures

Following Raelynn’s seizure on Sunday afternoon, I wanted to give an update on the frequency of Raelynn’s seizures lately.

03:04 – Seizure Update

It may feel weird to “like” a video such as this, but it really does help us keep making videos of Raelynn’s life with seizures, which helps many parents who are going through similar things.


Raelynn has generally been having less seizures than usual lately. While she normally has around 5 per day, she has been having many days in which she’s only had 2 or 3.

That being said, after her IVIG treatments last week on Wednesday and Thursday, she once again had 5 or 6 seizures on Friday and Saturday. So the treatments did not immediately reduce or eliminate her seizures. But I read that it can take on average about 10 weeks to see a reduction in seizures from IVIG therapy, so there’s still hope for the treatment to help.

Here’s a link to the video in which Raelynn received her first IVIG infusions: youtu.be/S2v-OPToNtA

The links below show a few seizures Raelynn has had throughout the years:

17 months old: youtu.be/6BEdEB-OJXw
18 months old: youtu.be/XhZMx7GHzBk
21 months old: youtu.be/WXOeCJKECb8
2 years old: youtu.be/om0LVyj74Xs
Almost 3 years old: youtu.be/pVMUT-pg0zU
6 years old: youtu.be/EYNXrQSr9ug

A few playlists you may find helpful:
1) Seizures: youtube.com/watch?v=…
2) Tobii Dynavox: youtube.com/watch?v=…
3) Assistive Equipment: youtube.com/playlist…

You might also see Raelynn make an appearance once in awhile on our family’s Youtube Channel:

Again, if you haven’t done so yet, please consider subscribing! Your subscription will help us keep making videos of Raelynn’s life and assistive technologies!

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